Originally Posted by loretta

Hi Ashely, I am so sorry you are suffering so. This is a wonderful supportive group of fellow RSDers. I have not done ketamine, but know many have had good results. I had RSD before being diagnosed and it is full body. I also have severe headaches 24/7 and know how hard it is to deal with that. Especially since you have such severe symptoms in your head area, please be cautious if you were to need dental care. I take antibiotics before any procedure, even cleaning, and also have the laughing gas to relax me before dental work. Also before any blood draw, I have them use a butterfly needle as it is smaller and less invasive.
You will find much comfort and support here. Please let us know how your treatments are coming and if you find relief. loretta

Originally Posted by alaska49

I have had ketmine infusions, I have full body and internal rsd I went through every treatment and seen 191 doctors in 7 states and nothing changed until I had ketmine. I did the in patient and the 10 everyday out patient then it went to 2 times a week for 4 weeks then once a week for a year usually its only for 4 weeks but I was so bad I needed i longer then it went to once evry 3 weeks now I only get them when Iam in a flare. but I also have ketamine nassal spray and lossanges which are a great help to me from going into flares. Iam sorry what your going through I too was at many points I just wanted to die as I couldnt walk, use my hands o f=eat so need feeding tubes I was hospitalized for 5 months before I was airvaced to cleveland.
Stay strong!

Samantha