Ok its been awhile so.
Life with RSD/CRPS under comp. Im sooo confused on what to really do next. everything so far is a bust. even pain meds. although it does take the edge off. My doctors cannot do much for me except monitor me, comp is denying all PT, and I won't do any surgical procedure (fearful of spread or any other complication) the way I see it is surgery is for life saving , or permant repairs not for .. maybe it will work. John hopkins is ok by comp only for consult but comp still hasnt responded to Johs Hopkins requests. and Im not so sure if going there for a consult when I know comp will not completely cover the treatment there after. I cant afford it.And yet again no guarantees, not like any treatment we recieve has any guarantee, but all others I dont have to travel hundreds of miles for,
I am trying very herd to live life best I can, trying to keep pain towards the back of my mind when approaching tasks. I've had some success with it but, still how long can you really try to ignore pain this bad. Plus this weight gain really sucks. Im sure most can agree to that. I am now taking nucynta, oxy codons, amrix, lyrics, vimovo, trazadone, and another antacid. that starts with an O. My swelling is still an issue as well, like now my hands and feet ate huge.I want to work out so bad but in the past it has always been with bad results so im afraid, and fear is still winning in my life. the fear of "more" pain.
I am lucky enough to have friends now that I acn physically spek with about RSD because they suffer its wrath as well. I have found something special in the past months that in all my life I couldn't. there are people in this world that are heaven sent, walking angels so to speak, and god blessed me with the privilege of their friendship. Now I am not a religious person in the way as one religion is for me, but I believe in god. and that there exists many paths to the light of god, he is making sure that the way is being guided for me. the pain is part of my quest, It sucks but I have no choice but to accept it.
This is where I am now. though It seems like I found a way to deal with this I haven't ive just accepted that this is the way it is so I must work at the rest.