Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-12-2013, 09:15 AM #1
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
Default fed up

i hate the pain crps gives me, nothing is truely working anymore. i have a bio skin sleeve to wear and a glove, 10 mg of predisone daily, also hydrocodone as needed, lidocaine ointment too. so done dr isnt mch help and nuero sent me on way nothing she can do. what other dr might help? pain dr said he is afraid of doing injectio cuz it may spread again.
mommystime2 is offline   Reply With QuoteReply With Quote

advertisement
Old 01-12-2013, 12:54 PM #2
Morgan Herritage's Avatar
Morgan Herritage Morgan Herritage is offline
Member
 
Join Date: Jul 2012
Location: Northern California
Posts: 131
10 yr Member
Morgan Herritage Morgan Herritage is offline
Member
Morgan Herritage's Avatar
 
Join Date: Jul 2012
Location: Northern California
Posts: 131
10 yr Member
Default

Having an open mind and having a medical team with open minds will offer best results. If you feel something within reason is worth trying and a doctor won't consider, find a new one.
Try all modalities and if ten fail with one having success, that is progress. Try different medications and procedures. There are many therapies to our disposal.
Realize even a tiny bit if pain relief with RSD is a huge victory. Usual cases don't really involve major pain relief, just enough to get through the day. The real fight is the spread and making it worse.
Good luck and best wishes.
__________________
Synthetic right hamate hook.
Rsd type 2
Morgan Herritage is offline   Reply With QuoteReply With Quote
Old 01-12-2013, 08:22 PM #3
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
Default

Quote:
Originally Posted by Morgan Herritage View Post
Having an open mind and having a medical team with open minds will offer best results. If you feel something within reason is worth trying and a doctor won't consider, find a new one.
Try all modalities and if ten fail with one having success, that is progress. Try different medications and procedures. There are many therapies to our disposal.
Realize even a tiny bit if pain relief with RSD is a huge victory. Usual cases don't really involve major pain relief, just enough to get through the day. The real fight is the spread and making it worse.
Good luck and best wishes.
problem i face is no one seems to really wanna change meds, oh i might get addictd, been on hydro for 11 plus years from back injury and very rare that i use all in 30 days
mommystime2 is offline   Reply With QuoteReply With Quote
Old 01-12-2013, 11:16 PM #4
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
Default

Something that has really helped me is ketamine nassal spray and lossanges they help numb the skin to keep the burning away.
alaska49 is offline   Reply With QuoteReply With Quote
Old 01-13-2013, 08:01 AM #5
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
Default

my doctor is trying to find some others to come on board with me. there are few cases here in northern maine. about 2 hour from canada and im in the last town with a hospital...im now a study because even the er docs knew nothing til after i went thru there
mommystime2 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 11:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.