flo what is this device you are talking about?

Yes Flo 53- Could you please tell us about this new treatment/device?
I have horrible systemic nerve pain when my meds wear off. Thank you.

"ketamine ;don't do it!!!!!

we who suffer from this illness should not be experimented on with this manmade drug

you don't need drugs

you need to use what is non invasive.

Please don't use Ketamine ever

Pain meds mess people up"


Opinionated messages presented as facts are inappropriate in an environment that is meant to be supportive. People who are managing their RSD with certain meds don't deserve to feel insulted or criticized for following their doctor's orders....or embarrassed that it did bring them some relief.

Sharing poor experiences with certain meds is helpful and can help warn another member about some side effects that they might be about to experience. There is a big difference , though, between saying, "I had an awful experience with xyz medication. This is what happened to me....." and saying, "No one should use xyz med."

Many of us have found some treatment(s) that have helped us manage life with RSD. Assuming that what works, or doesn't work, for one of us will be the same for all RSD patients is not wise.