Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-22-2014, 04:03 PM #1
drich drich is offline
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drich drich is offline
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Default Dr. Reed Migraine Stimulator

Has anyone had experience with Dr. Reed's stimulator implants that helps with Persistent daily headaches with Migraines? Any review would be appreciated.
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Old 01-22-2013, 11:46 AM #2
BraveGirl BraveGirl is offline
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Thank you. I hope you let us know how the stimulator goes if you decide to go ahead with it. You have my absolute best wishes for your daughter and your family.

Lori

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Originally Posted by LoriZ View Post
Hi Buckhorn24,
I'm sorry that this does not address your question at all, but I have a question for you. My daughter also has CRPS and migraines and her doctor was considering a DHE treatment. However, she decided not to give her the treatment because a previous patient with both CRPS and migraines had a strong reaction to the DHE -it caused significant and lasting pain at the site of the IV for the infusion. The doctors believed that the irritation that DHE causes and most people at the infusion site was much more significant in this prior patient because of her CRPS. Although this prior patient had a good migraine relief and the pain from the infusion has slowly going down over a period of months, The doctor has decided she's not willing to risk of flare in my daughter. So I have two questions:

1) Did your daughter have any significant pain at the infusion site from the DHE treatments? Or any other significant side effects that might have been unusual and attributable to her CRPS?
2) Did she receive any benefit from the DHE treatments? If so, were they just not significant enough, or not long-lasting enough?

Thanks,
Lori
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