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Diagnosed with stiff man syndrome?

 
 
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Old 01-19-2013, 11:03 PM #1
debbiehub debbiehub is offline
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Join Date: Oct 2006
Location: Long Island NY
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debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Diagnosed with stiff man syndrome?
Due to my full body muscle dystrophy, my neuro doc has done extensive bloodwork. The only thing to come back abnormal was ga65 which is an indicator for stiff man (I am stiff but not sure if this is correct) so the tx he wants to do is an iv of retuxemb..we already tried ivig. Just not sure what to do...


Thoughts?
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