Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-25-2007, 07:19 PM #1
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Default Arm is driving me nuts!! Suggestions???

Hi folks,
Just got home, and trying to do some computer work for a class I'm taking...and my arm is driving me up the wall--not so much pain, but I want to just crawl up the wall...or hit it--or something...it's hard to describe, but am going crazy--my hand is it's lovely purple hue [the color of choice, seems not all the time, but when the pain/burn or any activity at all] I'd appreciate anything you can offer!

Thanks a million!
CB
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Old 04-25-2007, 07:45 PM #2
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heya

sorry your arm is being REALLY annoying. Have you tried elevating your arm up? I know it sounds stupid but I find I get really stupid blobby pain (can't think how to describe it!) if I don't try and keep my arms up or at least flat. I guess you have tried heat'/ heating pads/ having a 30 minute rest where you just relax/ watch TV/ meditate/ listen to tapes where you rest your hands up? - well, whole arm up. Stupid question I know but does the purple reduce if you wiggle your fingers?

Hope it improves!! Sorry I can't send magic answers!!!

Love

Froggsy xxxxxxxxxxxxxxxx

THE ONLY REAL FROG IN THE VILLAGE
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Old 04-25-2007, 07:55 PM #3
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Default Up requires laying down...is that still up?

LOL! I'll give it a shot--Can't lift my arm up when I'm up, cuz of the pain and dead arm thing...[TOS anyone?] I've got a tens unit going on my shoulder right now--weird how the muscle is spasming--I've never the unit, I'll try anything. I usually only use the tens on the really hard knots in my back. Have done heat. I've used ice at the base of my skull before [have herniated disc] but after reading the forum about the ice, I won't try that on my arm!
Thanks for the post!

CB
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Old 04-25-2007, 08:40 PM #4
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hey

can you bend your elbow? The drs made me a thing that I could sit with and have (well, they invented several slings)

First one was tied to an IV pole and involved a type of sling where the bottom of my elbow went in to the sling and held my hand up straight - but with all the weight being born through the sling. The next generation one was made by doubling a pillow and placeing another on top - so that my arms could rest on the pillow but the arms were extended and raised.

Definetly takes a while to get used to!

really wish I could offer some help... erm.. open a bottle of Rose (no glasses - just long straw , dig out the chocolates and watch a movie?

Just thought I'd say I'm thinking of you..

love

Froggsy

PS - does wearing a sling for small amount of times help? or a collar and cuff??
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Old 04-26-2007, 05:29 AM #5
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Default Good morning!

The tens helped a little...along with the Vicodin and Flexoril--
Collar isn't all that great for me with my disc problems, but have done a sling, will bring one with me to work...thanks for all of your insight and thoughts. You know, as I read more and more on this forum, I truly feel that I have little right to complain, as others have much "fuller" plates.

You are appreciated!
CB
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Old 04-26-2007, 05:48 AM #6
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Hey CB

how are you doing today?

The collar and cuff can be hard - there is a way of putting it on though that takes the strain off your neck and takes it on lower back/ shoulders - by wrapping the cuff round your back and bringing it round.

I guess the biggest thing I have found since I got this is that no one can compare themselves with others here - although we can give insight into others and sometimes offer abit of practial advice or just stop people feeling so lonely by going "I do understand what you are going through, it sucks but I found x/y/z helped"...

How are you coping with work and RSD? I'm at uni doing a full time degree in Psychology and it's not the easiest when you have very brief "work" periods when the pain is low enough to concentrate... (also, sometimes I blame this place - I am serially addicted to it - and it's so much more fun gossiping than working!)...

Hope today is better

Love

Frogga xxxxxxxxxxxxxxxxxxx

PS - I'm lucky - I have a minion to do my typing...
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