Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-30-2013, 06:42 PM #1
loretta loretta is offline
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Quote:
Originally Posted by rafiki123 View Post
Thanks so much for all the advice. I did tell the doctor who treated me about past rsd but she wasn't familiar with it. I am in a brace, but can remove it. I am keeping the pain under control, and have started the vitamin c. I am already taking Topamax for migraine prevention, so that should be helpful as well. What I really need to do is just not worry, but it is hard not to. That was a very difficult time in my life and I don't want to have to go through that again.
Just a thought, might you consider temporarily taking an anti-anxiety med like lorazepam or zanex? at least long enough to get you thru till you feel comfortable the rsd doesn't come back with new injury? Hope the best for you. loretta
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Old 01-31-2013, 10:46 PM #2
daylilyfan daylilyfan is offline
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I can't remember where I saw this posted in the last couple days, but it is a great resource.

It notes that we should use Calcitonin Nasal Spray to prevent spread before invasive procedures.

I have not had time to really read it and understand all of it, but it also talks about vit. c and things to do to prevent spread with new injuries.

I saved a copy to my computer so I could put it on my iPad that I take to doctors offices with all my other info.

https://www.edsers.com/uploads/RSD.pdf
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"Thanks for this!" says:
birchlake (02-01-2013), loretta (02-01-2013)
Old 02-01-2013, 07:26 AM #3
birchlake birchlake is offline
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Excellent link daylillyfan! I hadn't seen that one before. Lots of great information in that article; very comprehensive.

Robert Schwartzman is a co-author and arguably is one of the most knowledgeable professionals regarding CRPS.

Bookmarked......
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Old 02-01-2013, 05:30 PM #4
Neurochic Neurochic is offline
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Just to mention that after that shortly after that paper was written, calcitonin nasal sprays were completely withdrawn across the whole of Europe because all of the clinical trials demonstrated that they are linked to raised risks of cancer. Canada are reviewing their position but the FDA don't seem to have decided to withdraw.

It's a risk that's important to weigh up particularly in circumstances where you are not someone who already has a diagnosis of osteoporosis where, arguably, the risk might be more worth taking. If you already had risk factors for cancer that would be something else to weigh up.
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