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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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I have to say that if I feel at all 'normal', I tend to go like heck and do as much as I can. I think I figure I am going to suffer later anyhow and so why not! I don't think of it as a hyper state, but as a normal moment, acting the way I used to .... pre RSD. I think of life as pre and post RSD.
My goal is to keep my spirits up and take the life I have and accomplish as much as I can despite the RSD, and I will do that for as long as I can. So, enjoy your hyper moments ... whatever they are, they feel good, don't they? joan
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Courage ... doesn't always roar, sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." |
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#2 | |||
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Junior Member
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Yes, This is me... If I feel normal at all! Running around trying to do chores, and lost items that seem to never get touched when I am docile.
I will say that I have caused so many painful flares, that my DH follows me around the house (lately) and begs me to stop. He is now trying to mentally sidetrack me onto something else, so I will stop. ![]() It is frustrating because DH and DD try so hard to keep up with the house, but it is not my **** little way. The things that annoy me they do not even seem to notice. ![]() Ahh Well, What can someone disabled do but cope and function the best we can Hugs, Rain ![]()
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#3 | |||
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Member
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Frogga,
I understand what you are saying, I think. If you are asking if anyone gets more active because of their pain...then I have to say that I do. I haven't really every thought about it being some sort of hyperactivity, but more as being really restless. If my pain gets higher, I get restless and have to move around a lot. I am also irritable, and grouchy, and figure that while I am up and moving, I might as well go ahead and get some things done, since I hurt so badly anyway....maybe it will help get my mind off of it. LOL...it usually doesn't work out that way, but that doesn't seem to stop me from doing this time and time again. I also have gotten so over tired and exhausted that I "pass my sleepy point", and can't go to sleep no matter how much I wish I could. Sometimes this is due to an increase in pain and happens along with the restlessness, but it can happen on it's own too if there is anything that is going on that causes me to not be able to fall to sleep when I really could. ![]() Sometimes, when pain levels are really bad and I am restless, I think that not only am I trying to do "stuff" to distract me from the pain, but also in the hopes of just tiring myself out so much that I will have no choice but to fall to sleep, no matter how badly I hurt. That also doesn't usually happen, but again, I still wind up doing it anyway. ![]() But, then, I think that we all have the same thing going on that Rain and Joan do, and tend to over do things when we are having "good" or even just "better" days, in the hopes of getting lots of stuff accomplished that we usually can't. I know that I am guilty of that BIG TIME. I will do all kinds of things, just because I am feeling better...trying to take advantage of that time as much as I can, even though I KNOW that I am going to pay for it. Probably be paying for it later that very day, or the very next day at the latest. But, I think that these are two separate issues here...unless I have totally misunderstood what you were asking? If I haven't, then I can tell you that you aren't alone. LOL, if I have...then I am stumped. ( ![]() I hope that you have a better day today. ![]() Love and ((hugs)) Jose
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"Be Excellent to each other." ~Bill S. Preston, Esq. & Ted "Theodore" Logan "It is our choices that show what we truly are, far more than our abilities." ~Albus Dumbledore |
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