Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-04-2013, 11:39 PM #1
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It is a big step to have to have assistance of any kind. I can relate. I am currently using an electric wheelchair. It has made my life so much better, though I am self-conscious when I use it. I figure I can either use my energy and pain tolerance basket to navigate to where I want to be on foot then be exhausted and in pain, or I can use the chair and have plenty left in the basket to participate and have fun. Hmmmm. I'll use the chair.

Before the chair I used a walker. Today, I'd opt for the rollator.

I am facing loosing my drivers license. I don't drive much anyway due to the meds, but being told that I can't drive just rubs me the wrong way. That is really taking a bite out of my independence.
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reluctant@thetable (02-05-2013)
Old 02-04-2013, 11:27 PM #2
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Originally Posted by reluctant@thetable View Post
I am just under the 2 yr. mark from when I injured myself and my whole crps type 1 disorder started. I am starting to experience my first big loss with this disease.

I am rapidly losing the ability to be able to walk for any distance without significant pain and spasms. (I'm on lots of medications for crps, spasms & pain.) My balance is also starting to go and I've had a few near falls. This is truly upsetting for me. I enjoy my walks and my hobbies that involve walking so I need to figure out what my next step is to try to hang onto these for as long as I can.

I don't feel that a walker will help because my legs hurt too much. And I don't feel like a wheelchair will help because my arms and upper back hurt & are weak. Crutches are out for the same reasons. I'm not equipped to have an electric wheelchair in my van- couldn't imagine having to get it in and out of the trunk.

I'm considering the type of walker with 4 wheels that one can sit on and just push oneself along with his/her feet. I don't know the name of this or if it's even intended for this use.

Any input/suggestions from anyone who has gone this route would be appreciated.
My best suggestion is to do or use any item that makes you most comfortable. I have had very limited mobility for 20 months crps in lower leg and foot and have to use a wheelchair for almost all activities outside of my house. I also had to learn to ask for and to accept help, sometimes from complete strangers. I had one of those lovely plain jane wheelchairs, but when I accepted that I will likely always have some dependency on tthe chair I purchased an ergonomic chair from Karma, love it, super comfortable, and oh yea it is bright red. Obviously I can't hide the fact I am in a wheelchair nor would I want to hide it, so now you can't miss me coming. Wishing you the best and I am sure you will find what works best for you.
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