Hi CRPS Songbird, I looked at some of your recent posts and I'm assuming also by your name, you have already been diagnosed with CRPS? It's good you are seeing a neuro soon. I know this is a tough DX to absorb. When I was diagnosed and started reading the paperwork the ortho doc gave me, it was like reading a foreign language-so difficult to absorb. I followed that up with a neuro with same dx.
Like was mentioned, because of the variety of symptoms and varying degrees of symptoms, it can be confusing. And as we all know, we don't want this diagnosis.
I am a huge believer of taking charge of our health. Keeping copies of our tests, blood work etc. and knowing what those numbers mean. I appreciate so much all the info on this site, the reseach that is shared, personal experiences, comfort and support. We certainly all need it. I hope your neuro appt. goes well and you get some answers. Keep us posted and let us know how you are doing. loretta

Talk to your new neuro about that. Discuss that you question the dx and want his opinion on it. Just don't lose sight of your main goal of getting adequate treatment for the symptoms you are having.

In my case, I could list the way my case does not have x.y.and z from the "typical" RSD case, but I always have to come back to my main complaint......"severe burning pain out of proportion to the severity of the original injury" That really only fits with RSD.

I also like Catra's reminder....there is no "typical" with RSD

I do have an appt with a Neuro 03-07, so we'll see what he has to say.
I talked with my new PCP today for CRPS. He wants me to try a 2week run of Prednizone. We'll see how that works out. He basically said there really -0- left for me medication wise. Since I have soo many adverse reactions and allergic reactions to almost ALL of the nerve pain meds, ie Lyrica, Cymbalta, Neurontin, Nortriptyline......ugh lol. I'm having a hard time because I'm only on Tramadol for pain. Still seeing PT and starting with a pain psychologist. We're trying hypnotherapy and boy feedback. Maybe it will help. I know I need something. Part-time work is killing my finances but has proved to help my pain levels....

just thought I'd update all my friends!!

I am curious to hear how the hypnotherapy will work for you. I looked into that a few years ago, but could not find a local practitioner.

so far, because it's just beginning, it's not slowing the pain much but I am more relaxed.SO that's a start...now if she can help me lose a little weight too...lol