We do learn from eachother. I have been so busy I haven't been able to call my neurologist that I see for migraines yet. But I do think you are right about getting a blood pressure monitor. I will feel umm weird, i just know my blood presure is droping. I can really feel my heart beat and it seems not right. and I will get light headed. And only want to sleep or lay down. It is such a weird feeling. My blood pressure has been low lately and really low for me. I am usually very high.
I hope you find your answers and don't give up hope just yet. And don't worry about what other people think! You just do what you have to do!
Angelina

[Do you know if you are hypermobile
I didnt know for many years after getting CRPS
When I started fainting it could happen up to 25 times a day and I was having convulsions. I had to wait until I was 16 to see a cardiologist as my PM didnt think it was linked
The cardiologist diagnosed me with POTS and said its quite common in people with Hypermobility or Ehlers Danlos
Testing has confirmed it all and its all linked into autonomic dysfunction
Knowing what the problem was and most days I can stop the faints with a few simple compression exercises or sitting, pacing and watchin how I stand.... basically POTS means your heart rate and blood pressure has a problem catching up with you when you change posture
Hope this helps and maybe mention it to your MD
Alison xx

My daughter also has problems with syncope (she has CRPS as well). Her doctors describes it as a problem with not enough blood getting to her brain, so she gets dizzy and sometimes passes out. The main strategy has been to increase her blood volume, using the following measures:
1. 4000 mg salt per day, using Thermotabs (but some docs say to not use salt tablets and increase dietary salt)
2. Fludrocortisone
3. 1 liter of water/day

Obviously, you would need to do #s 1 & 2 under the care of a doctor, but #3 you can try on your own.

The other thing that was recently added that has helped a ton is compression stockings: http://www.brightlifedirect.com/jobs...-15-20mmhg.asp

They keep the blood from pooling in her legs, so there is more available to get to the brain. Some insurance plans will cover them.

All of these measures were put in place after my daughter was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), which was diagnosed primarily w/ a tilt table test, however, I think the same measures are used for a variety of similar autonomic dysfunctions. Good luck!

Lori

I also was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2009 after spending weeks flat on my back, not able to stand up without my bp dropping extremely low (unreadable on home machine) and heart rate raising over 30+ points just standing. It came on after a bad ear/sinus infection. Dr. said I had probably had it since childhood (have always been prone to faint) but the illness kicked it into overdrive. I was put on Midodrine and it was a wonder drug for me. I was able to go off the med after about 6 months and am ok. Still prone to faint with pain and have to wear HR monitor when exercising, but almost normal.

This episode occurred about 5 years after my RSD went into remission and I always wondered if there was any kind of connection.

Hope you can get your fainting spells figured out. As others have said, drink lots of liquid, increase salt, ( I drank low cal drinks with high sodium in them), and compression hose might help. They usually use a tilt table test to confirm diagnosis.

Deb

Along with salt tabs, fludrocortisone, increased water intake and compression hose, my doctor gave me this simple tip: Always lie down or sit with your legs raised.

Also: I'm not positive but I don't think chronic low blood pressure is a cause of POTS. The problem is a sudden drop in bp so the blood pools in your feet, not something blood pressure med would help.