Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-19-2013, 01:38 PM #19
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Angelina55 Angelina55 is offline
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Angelina55 Angelina55 is offline
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Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
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Quote:
Originally Posted by tkayewade View Post
I agree! I also have been reading on my iPad because I can see it easier. My eye issue is making it ard to differentiate between letters and numbers at the moment. I told my cousin, who is running a marathon today, that someday even if I have to walk the whole thing and stop to rest, I will do another 10K. Lol I do love having the kids because it makes me focus less on my disease and more on them. Im so glad to have kids that recognize my limitations and know that sometimes we can't do everything. I try not to lose hope. I'm going through a rough period right now. I was approved for a scs in mid Jan (I may have said this-rsd brain lol) and the dr and hospital are in a huge fight so I've been in limbo since mid December when we started it in motion. Anyway, I tend to do retail therapy when I'm depressed so I've tried to stay off shopping sights haha. I also play words. I can't remember my ame, but I'm logged through Facebook. Oh yeah Facebook. I spend a lot of time there, here, and I funny. Oh my! Now it can be off color, but it never fails to make me smile.

I am glad for you that your kids understand that you have limitations. Sometimes it can be hard to keep up hope and faith but there is always room for hope! "When all seems lost and it seems like nothing is left, there is always hope." I am not sure if I quoted that correctly, but it is from one of my favorite books. I also spend lots of time on facebook, and the internet period since this disease. You can go anywhere from your bed! lol That is another reason why I read..lol I wish you luck with your scs. Keep us posted.
Angelina
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