Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-18-2013, 12:55 AM #4
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Kymmie67 Kymmie67 is offline
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Angelina....I haven't really noticed the cold spots happen like the hot spots do. I do, however, notice that the one side most affected by CRPS does get colder than usual every now and then.

Reluctant...I initially was sent to pt by my ortho doc who is the one who diagnosed me in the first place. He told me that if that did not significantly reduce the symptoms or rather, the severity of the symptoms, then I was to immediately go see the pain doc. Pt did absolutely zilch so off to pain management. The dr put me on gabapentin to start with, and started me on the road with my idiotic insurance co for a sympathetic nerve block.

Insurance denied the block stating that I had not met all the requirements for "medical necessity". So, I paid out of pocket for that one. Started imipramine, then after I'd been on that for the required four weeks (per insurance), I had another block done. Switched to Cymbalta, had a third block.

These blocks would help for a couple of days, if that, and then pain was back full force. We decided to try a femoral nerve block. The first one was accidentally pulled out of place after a few hours, so we did another a week later. That's when I fell (christmas Eve) and injured the muscle in my thigh and things have been going downhill ever since.

I've been taking ambien for several years, so that has helped with the sleep problem, but I also take Percocet for pain. It didn't seem as though that was helping all that much until I was running low and had to ration myself. My Rx said one 7.5/325 every six hours. Well, I had to take every four. Not good, so I was running out before I could get another Rx. So, I found out that the Percocet was doing at least something to help.

So, that's what we've done. What do you think?

Thanks.
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