[gabrielyse]

I was wondering what plan of treatments everyone used. It seems all doctors tend to do them differently... 3.5 hours for 10 days, 4 hours 3-5 days, 4 hours once a week, etc.

My partner recently had a hysterectomy and a 4 day epidural. The epidural was successful after two days of getting the dose right in breaking the pain signal but now her rsd has spread from her neck, shoulders and left arm down her left leg, back and possibly on a lesser scale in her abdomen (still only a month out from surgery so crossing our fingers it's just heeling pain, although the burning seems that it's not) Her previous treatment plan of cymbalta, percocet and ms contin all in high doses was allowing her to live a semi normal life but even with adding a double dose of oxycodone she gets maybe 2 hours a day of a pain level below a 8 and now trying to find pharmacies that are actually stocking the percocet and oxycodone is a problem which leads to more pain and staying up for days in pain then finally sleeping for two days straight to conserve pills. But with a lack of doctors willing to even take on her case we're looking to travel to either a California dr or Dr. Pulley in Utah, if she can make the trip

We've been looking into IVIG and Ketamine, with hopes that ketamine could help slow the spread if not give her some relief. nerve blocks have only made things worse and neurontin, providing a small amount of relief in the past at high doses, turned her into a zombie and she refuses to live like that.

Watching this progress from something a low dose of vicodin and cymbalta could control to something now she can't find a comfortable position to sit, lay or stand in has been really tough, especially finding a doctor who cares even a little bit about someones quality of life. Having been refused to be seen, told that the party is over, told to get all pills and just do physical therapy, and everything else has really gotten to her but i refuse to believe there is not something, even an extreme treatment that could even bring her pain down to a 6-7 that is a much more tolerable level for her.

Sorry for the huge post! I guess the past few years I grown a distrust for medical staff to the point where i'd rather hear your stories and than follow what most doctors have to say.