Ok so heres a list of medications I've tried.


Gabapentin/Neurontin ----Severe Fatigue even after 3-4weeks

Lyrica----- Extreme vomiting nausea constipation (tmi i know)

Cymbalta-----Extreme itchiness, major bright red rash (Anaphylaxis)

Amitriptyline---no effect on pain other than helping to STAY asleep (not fall asleep)

Nortriptyline-----same as amitriptyline

Tramadol---- only works when not have too big a prob with pain

Oxycodone----A bit better than the tramadol but ineffective when having major flare ups



I have a quick doc appt today @ 2:30pm I need to talk to the Dr about medications as I am in serious pain again this week....I'm struggling just to get by....

I am seriously getting fed up with all this crap......grr

I wish I could help but you've listed most of my medications. You've probably used this as well- I find that if an area is particularly painful I apply a lidocaine gel patches to the area and it gives some relief. What keeps me going is that warmer weather may be on the horizon. I hope that gives you a "wee bit" of encouragement.

Yup I forgot I use those too lol! But I'm out and cant afford more right now

Also, on another note I'm pretty sure it's CRPS and not just prolonged nerve damage. My arm has started to turn bright red off and on that is of course during massive flare ups....

So he's upped my oxycodone, dose to 10mgs and wants me to try VALIUM? For a muscle relaxant. We'll see how it goes......

I get the afford issue. It's crazy.

I use four Lidoderm patches a day to wrap my ankles, and they work wonders. But it is really outrageous what they cost. Through my insurance the four boxes I get each month are $30; without insurance I'd have to fork up $1040 to my CVS. Seriously.

I don't know if this has been mentioned, but I've started on Nucynta, which leaves me lease devastated than Vicodin. 100 mg at a time puts a dent into my pain, and leaves maybe 50% functioning.

Nucynta is available in extended release formula as well.

:confused So sorry sometimes these things just don't work you are not alone in this we have all tried many things some with a little success and some with nothing never give up they may be something that will work a little I have A SPS fitted its 3 years old now and its not really doing a lot and pain is back to how it was. It gave some relief but not as effective as I hoped you could ask about this but think carefully about it Good Luck

So right now this is what seems to be keeping the loins share of the pain down.

Valium 2mg 1 in morning 1 before bed to help with muscle tension
Oxycodone 10mg 2-4tabs a day depending on pain level that day
Amitrityline 50mg 1 tab before bed mainly to help with sleep


Theses seem to be helping at lot! I think the main problem before was that the tramadol wasn't really helping the daily levels of pain as much as I needed to that my CRPS was more likely to go into a more major flare. Probably from the stress and muscle tension. I am sooo relieved to have some significant pain relief lol! I still take it easy and try not to over do it, meaning it still takes me and hour to do dishes or 4 hours to fold laundry. At least I have devised as way to get some of the minor housework done with out triggering a flare!!
Lets hope my current balance stays!!!