Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-19-2013, 09:48 PM #41
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Originally Posted by CRPSsongbird View Post
As far as my SGB goes, it didn't work. At least not for more than barely a couple of days. So they didn't want to do it again, and thought .

That means that the SGB WORKED !

A series of 6 given within just a few weeks has put some into remission. Doctors knowledgable about RSD tx should have quickly scheduled another SGB.

Their is no valid reasoning in "since I didn't have any luck with that and the only other procedures were just MORE invasive the didn't think I was a good candidate for any other treatments like that." None. Even if this procedure didn't work, which the facts say it did, that would have NO bearing on whether or not a TOTALLY different procedure would work.
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Old 03-19-2013, 09:51 PM #42
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Originally Posted by CRPSsongbird View Post
It's not a lack of trying or planning, or anything else you and Finz have mentioned. Trust me. I am a smart. capable women. I KNOW where to get help,
"But all I have is Oxycodone 5mgs, it's not extended release.....so AM I taking the "bad one" so to speak?"

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That leaves me confused about why you would keep starting new threads asking new questions, if you already know the answers.


If you just want to vent, you could simply state that. Otherwise, when we really basic questions, we assume you really do need some answers. For many of us, typing is NOT a comfortable procedure. If you know the answers to your own questions, you could mention that in your first post and save us the effort. Many of us are here to try to help. When we see someone who desperaely seems to need help, we do try to step up.
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Old 03-19-2013, 11:24 PM #43
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Quote:
Originally Posted by finz View Post
That means that the SGB WORKED !

A series of 6 given within just a few weeks has put some into remission. Doctors knowledgable about RSD tx should have quickly scheduled another SGB.

Their is no valid reasoning in "since I didn't have any luck with that and the only other procedures were just MORE invasive the didn't think I was a good candidate for any other treatments like that." None. Even if this procedure didn't work, which the facts say it did, that would have NO bearing on whether or not a TOTALLY different procedure would work.
..funny the anesthesiologist who performed it says he will only ever do up to 3. Especially with poor results. He is considered to be the best in town by the way. It did NOT work for me. It started to wear off almost completely the second day. That is NOT a good response. At least as far as my DOCTOR says. And I am getting tired of seemly defending myself against your insinuations. I don't understand your need to constantly question or correct what is going on between me and my doctors, in that regard, or whatever comments or questions I choose to post. I don't know if it's a misguided sense of wanting to help, but you are coming off a little pushy and somewhat demanding. Everyone here knows that everyone responds to different medications and procedures differently. What may work for some, won't for another.

To you separate post below, I did NOT know they were the same thing. I don't buy or hang around people who use it on the streets. And whether or I have a question, can't I express frustration as well? Isn't that what this site is supposed to be for? To talk to or vent or ask questions to people who empathize and support you? Not to feel constantly feel questioned or doing some imagined "wrong" such as having no sense on how to run my household finances? Or that I'm not already doing everything in my power to recover??

Just tone it down for goodness sake....
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Old 03-19-2013, 11:30 PM #44
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Last edited by Chemar; 03-20-2013 at 02:54 PM. Reason: NeuroTalk Guidelines on flaming
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Old 03-19-2013, 11:34 PM #45
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Not to feel constantly feel questioned or doing some imagined "wrong" such as having no sense on how to run my household finances? .

I can't explain the oversensitivity on this issue. I don't know anyone else who would consider the advice to discuss the inability to pay for medications with the ordering physician as the insult of "having no sense on how to run my household finances." That advice is reasonable....and absolutely vital in an honest and effective doctor patient relationship.
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Last edited by finz; 03-20-2013 at 12:10 AM.
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Old 03-20-2013, 12:07 AM #46
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..funny the anesthesiologist who performed it says he will only ever do up to 3. Especially with poor results. He is considered to be the best in town by the way. It did NOT work for me. It started to wear off almost completely the second day. That is NOT a good response. ...

Just tone it down for goodness sake....

The standard for determining if it was effective is if ANY pain relief lasted more than the first few hours that came from the local anesthetic. You have mentioned getting several DAYS of relief from it.

It is unfortunate that your local anethesiologist doesn't seem to be aware of the tx of RSD that others are......

http://www.medcentral.org/main/Stell...lionBlock.aspx

"How long the effect of the medication last?
The local anesthetic wears off in a few hours. However, the blockade of sympathetic nerves may last for many more hours. Usually, the duration of relief gets longer after each injection.

How many stellate ganglion blocks do I need to have?
If you respond to the first injection, you will be recommended for repeat injections. Usually, a series of such injections is needed to treat the problem. Some may need only 2 to 4 and some may need more than 10. "
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Old 03-20-2013, 01:59 AM #47
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I've posted info about SGB's many, many times over the past few years. And frankly I'm to the point where I figure anyone that truly wants to explore the option will do their own research, but I'll run through it again...

Any reduction of pain is a sign of the block working. If someone has a few days of relief, that's actually not at all a sign of a failed block. If someone has a bad reaction to a block--in otherwords it causes spread, that is obviously a big deal, but that's rare.

So, how does one prolong the results of a block?

1) Change the block "cocktail". If DeproMedrol was NOT used, then it's a really good idea to add it in.

2) Having a series of blocks can have a cumulative effect.

3) Lastly, the skill and technique of the doc performing the block are very important. Is he performing the block via fluoroscopy while the patient gives feedback? This isn't fun--but it is effective. For someone with a low threshold for pain, it might prove difficult. If you're simply being knocked out, and the block is done, then it's a crap shoot...

I've had SGB's performed in the standard, haphazard method I'm guessing is not uncommon. I've had SGB's performed by a former spine surgeon, that treated the procedure like a spine surgery. It was a lengthy procedure, via fluoroscopy. The same doc performed the blocks with DeproMedrol and without. As a result, I had widely varying results. Even with a highly skilled doc, my results only lasted a few days without DeproMedrol. But I've had results that lasted up to 3 weeks when done via fluoroscopy and with DeproMedrol. I have had additional surgery with a SGB beforehand, that didn't result in spread. I believe I could have achieved remission IF the right doc, using the right meds and technique had performed a series of SGBs in the first year of my developing RSD/CRPS. In fact, I'm having a SGB done to try and stop spread in a new area...
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Old 03-20-2013, 02:47 PM #48
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You suggested things such as running up credit cards, which I wouldn't be able to pay back. And seem to think that is a good viable option? As far as the "hypersensitivity", it's not. You said, multiple times that was a "lack" of financial planning. Which I explain there is not. Yet you seemed determined to insist there was, that's not being hypersensitive. That's not being hypersensitive, that is telling you I already AM doing everything I can. Which you probably don;t realize. And maybe I wouldn't be some-what sensitive if you would STOP insist thing I'm not doing everything I can. It is very insulting, maybe you didn't mean it that way, but it is. So STOP.

Last edited by CRPSsongbird; 03-20-2013 at 06:29 PM.
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Old 03-20-2013, 02:56 PM #49
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I am going to need to intervene here and ask that members please remember the guidelines when posting to one another. Members are never to make personal negative remarks to one another please. I had to edit a post and hope I wont have to intervene again.

thanks
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Old 03-20-2013, 05:28 PM #50
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I wish my SGB worked for any amount of time. All I got was horners syndrome. Not a big deal but I paid $128 for it.
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