Since being diagnosed in August last year, CRPS has spread from my right knee where it began, to include the thigh first and then calf and then buttocks. From there it went to my other leg.

What I am wondering now, is if the sensitivity and generally hot to the touch of my face, is the dreaded spread? Would it jump that far, when the only thing that might be affected between my bum and my face is a patch of burning skin here and there. Like on the back of my arm, for instance. It burns for a while, then it'll stop. Or I'll have a patch on my belly that will burn for a while and stop.

It seems completely random and having it in my face scares me more, to be completely honest. It could be possible that my eyes are already affected, but those things that have happened there, might be due to the meds.

So, would it jump that far? Has anyone else had a jump that significant and had it stay? It hurt to take my makeup off today! The sensitivity was one thing, but now the hot, burning? Yikes!

Thanks!

Hi Kymmie,

I'm "jumpless" so far, thank God ! So, I'm weak on my knowledge of "long distance jumps" and just guessing here......

Could it be part of the sweating issue ? My RSD area is the back of my neck, but my sweating has always been neck, both arms, chest, and face/head.....big ol' hotflash.

Which brings up another possible dx......I don't know your sex or age, but could you be having pre/menopausal hot flashes ?

Does sweating come with the "hotness" ?

Or does it have allodynia with it ? Is it constant ? Or coming and going ?

What is the eye situation ?

Sorry that you are dealing with this......I sure hope it's not a spread.

Hi Finz...

I am a 45 yr old woman, so I am definitely of the pre-menopausal/menopausal age.

I've had what I think are hot flashes before my dx, but they usually involved sweating over most of my body. This is just my cheeks and forehead being hot and yes, sensitive. It was really bad when I posted the first time, but not so much now. It seems to come and go. Just like the other hotspots. No sweating involved with it.

I just don't know what to think. I guess it could mean anything, really. I've had this thing spread, but mostly all the places have been connected somehow.

As far as my eyes go.....my vision has gotten quite a bit worse. I wear glasses, but my current Rx is not very old...this problem seems to have happened when I was dx/started meds, so I don't know if it's CRPS or meds. Also, my right eye tends to get really squinty, especially at night...they burn a lot more, too. I'm just one big ol' bag of issues!

I've had right shoulder surgery twice, although that wasn't the start of this whole mess. Lately, both shoulders have started to get really sore...achey and all that. My hands hurt, especially in the morning and at night.

I'm just falling apart! My poor husband doesn't know what to do with me anymore. He has, however, figured out that the more I do during the day, the more I hurt at night....so, I think he's had a few conversations with the kids about helping me out more during the day. With six kids, I really shouldn't have to do *anything*!!

Ok....I think I've gotten sidetracked....no concentration skills either.....but that's another post.

Thanks for indulging me!

I just saw this thread.

I have to ask....do you take blood pressure medications?
ACE inhibitors? Those can cause your symptoms too.
They elevate bradykinin, which is a biogenic amine that causes
vasodilation and flushing skin. (and swelling elsewhere anywhere in the body).

If you do take an ACE inhibitor this is a bad sign and you should discuss stopping it ASAP...with your doctor. I had a massive drug reaction like this... just recently.

This warning goes for anyone taking an ACE inhibitor, whether they have RSD or not.

Nope, no ACE inhibitors.

So, I'm not sure what to think or do. Today is horrible! My whole body burns!

Thank you for any input. I'm a mystery!

Certain narcotic medications can put hot spots on your body. If that doesn't apply to you, I apologize. RSD in general gives me hot flashes/hot spots. Face included.
As long as the sensitivity stays away, you should be ok. Prickly skin, the tingly/electric feeling coming on in an area is a sad sign of spread