Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-21-2013, 10:12 AM #11
CRPSsongbird CRPSsongbird is offline
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Quote:
Originally Posted by mollymoo123 View Post
i have been using water based and un scented moisturisers on my burn sites to keep the skin soft. I have been using it after i shower and using it to massage my arm. my arm isnt to hypersensitive, although its heading that way slowly. Until now i would say more the oppostite.
I really think im early days and each day im seeing new symptoms. yesterday i sterted with tremors and the hot/cold feel. So im guessing i have worse to come. Its only just under a month since it spread from just my middle and index fingers to my entire arm. Its also getting into my sholder now. and im really noticing the burning pain. grrrr. But im not needing huge amounts of meds to control pain and i can stil use my hand and wrist a little before the pain starts. I stop once it hurts.

Today is a bad day. I see what everyone means by the weather making it worse. Ive taken extra painkillers and am staying on the couch while its rain and wind outside. I also wonder if i overdid the excersise yesterday. I went for a walk and went to the beach to get my hand moving in the water. It was really good though and i felt great after and could move my hand with little pain. I felt wonderful yesterday and full of energy and today ive hit a brick wall.
If you're at home try soaking in a warm bath. Sometimes that can help combat the extra pain from cold damp weather!! You do have to be very careful about exercising. I've noticed that my pain doesn't start right a way when I "over-do" it. It doesn't take ,much to over do it sometimes, but I usually hurt much after the same day or even the next. Epsom salt baths can help take some of the aching away.

I would talk to a physical therapist or doctor who is knowledgeable in CRPS/RSD before working out too much. It's highly irritating, but sometimes the silliest things can set off a flare.
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Old 03-24-2013, 08:07 AM #12
Brambledog Brambledog is offline
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Quote:
Originally Posted by mollymoo123 View Post
Today is a bad day. I see what everyone means by the weather making it worse. Ive taken extra painkillers and am staying on the couch while its rain and wind outside. I also wonder if i overdid the excersise yesterday. I went for a walk and went to the beach to get my hand moving in the water. It was really good though and i felt great after and could move my hand with little pain. I felt wonderful yesterday and full of energy and today ive hit a brick wall.
This is a familiar story to all do us with CRPS I think - trying to find a pattern or control it is a source of frustration. My physio told me to listen to my body and not force things. I think a routine, especially in the morning, is a really good idea - then i can tell what kind of day it might be lol! If the exercise and massage etc cause pain or visuals symptoms then I know to take it careful and not push too hard. If the morning routine leaves me refreshed and energetic then I know I can get on a bit more.

The important thing is to avoid the peaks and troughs life, where one day feels better and we do too much, then the next three days are hell because we overdid it... I have a blanket on my sofa and I sit in it and keep warm during my frequent rest periods, it seems to keep the daytime burning a bit more controlled. Little and often is a good plan! Ten minutes of laundry then a half hour rest lol I've learnt the hard way that if I spend half an hour hoovering, I'll have a miserable rest of my day.

Everyone suffers this thing differently. Listen to your body and try and find that happy medium where the good days predominate...

I've got CRPS in my whole left leg and foot, and it's in the process of spreading throughout my left arm and hand. Yesterday I had pain, burning and swelling in my first two fingers...it is a scary thing sometimes Today I feel as though I've got sunburn on my left arm and spent yesterday waving my arm constantly - it has that dull achy pain of overuse lol.

Sory to ramble on, it's good to talk about to talk about these things with people who actually know what I'm on about!!

Bram.
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mollymoo123 (03-24-2013)
Old 03-24-2013, 08:58 AM #13
mollymoo123 mollymoo123 is offline
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Thanks Bram
I wish i had taken your advice earlier today. lol im thinking tomorrow will be a bad day! Oops. I took my dad shopping today and he has a bad back so it was easier to do things myself. Plus he dosnt understand whats going on with me. He just thinks my hand hurts where i got burnt. When i was burnt his main worry was that my face might have been scared. Also i think i might be on too much pain meds because the warning pains didnt show and i when "awesome, i can do anything" I feel so stupid now and Sooo sore.
Im not the sort of person to be defeated and i guess this is a lesson i have to learn. Argh. Im back at the PT this week. I have to travel and get someone to drive me 100km (62miles) to see my PT so im doing it at home the rest of the time. but tommorrows weather will be nice so i think a soak in the ocean will be happening.

Im also trying Mirror Box Therapy when i go to the PT this week......and Thai food after as a treat. YUM! You have to have something to get you through the Physio therapy right? lol.

Thanks again everyone. Your the only ones that get this!
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