Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-30-2007, 07:40 AM #1
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Hi miepie,
Thank you so much, I dont know how to send you my email so I have to be up in 25 minutes with no sleep to get my son up for school. So after I get some sleep I will email you with my email. I know we will become great friends. We need each other .we BOTH do. Im here. I will email you soon today Monday Calif.time. God bless you........Take Care Karen
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Old 04-30-2007, 08:12 AM #2
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Default Hi,

I was just wondering if you have been checked for Interstital Cystitis. That is a bladder disease.

I have it and the pain is so bad, you can't sit, stand, or lay down.

I have had treatments to calm it down for about 5 years and I have seen quiet a bit of relief but I still need my Methadone to calm it down.

I will try to find you a website on it but in the meantime if you type it into search then you will find some good info on it also.

It's a hard one to diagnose. it took me years to even get it diagnosed.

Sorry to hear that you are having such a bad time with this bladder pain, I sure can relate with you.

Ada
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Old 04-30-2007, 09:33 AM #3
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dreambeliever128,
I was wondering if you can tell me something does it start ouy with having no control not knowing and then you cant stop? I had a bad 2 hysterectomy in 95 at age27 they didnt say that things can drop. I didnt hav aby problems intil 6months ago it started slow now I am just starting to have pain sometimes I just thought that Its when Im sick but it will stop after a few weeks but then like now with my rsd so bad evverything is always that my dr says .So if you can find that address or anything can you let me now.I will give you my email if you have anything on this I have nothing left...Thank you so much you both need help Karen
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