Hi Dearest Karen~ Sometimes, all any of us can really do, is just take it one little step at a time. Those little "steps" may seem quite "insignificant", given the BIG picture, but they ALL ADD UP.

The unknown IS scarey, Karen. We are all just "human" in that regard. But, then again, we really do not have much "control" over God's plans, do we? All one can do is the very best one can do, even if it is "minute by minute". While our "bodies" may "fail us", our FAITH never does; nor does our LOVE and our spirit! Frogga is a most wonderful example of that, and so many others here on this Forum!!

Karen, you have taken a VERY important BIG step, by SHARING and "opening up" to everyone! You should be so VERY PROUD of yourself. When others are aware of the challenges that you face, then it gives others an opportunity to help share your burdens, no matter what they may be. That's what friends and family are for!

We are ALL here for you, Karen. KNOW that and BELIEVE that.

You just keep your Faith and your Spirit. That is your TRUE beauty, Karen.

Most Fondly,

Brokenwings

Just sending a few hugs your way! (((hugs)))

HI InHisHands,
THANK YOU !!!!!! you are a wonderful girl..............You are very pretty .Thank you for your help this morning and I will write to you a little later............I told Adam my son about the site you gave me I told him it would be really good for him......He said yes he wants to .Do you know one of teenagers with dealing with this? He needs to talk when he feels like it. He would be on that all the time so if you know of one Please let me know............Im sending you all the hugs in the world..........Thanks for the hugs I needed them specially from you .....................Take Care dont do to much...................................Karen

Karen,

I know of a site for teens *with* RSD:
http://www.angelfire.com/wi/rsdhopeteens/

As far as caregiver's support groups here is what I have found:
http://groups.msn.com/RSDOutreach/welcome.msnw
http://forum.caregiver.com/
http://www.care-givers.com/community...ty.html#Anchor
http://findingpeacewithrsd.com/?gcli...FRtdQAod7m13PA
http://forum.caregiver.com/viewforum...2d9da2456ae51a


I hope that they are of some help to you and your son!!

Dear Karen..

Do you want me to find the neuro/ PM that placed the Prialt pump? I think it was at John Hopkins univeristy hospital - but I am not from the US so not a specialist in where it is.

Prialt is a very new drug and very few people have been placed on it - i know that with the person I know who had it they had a VERY BAD reaction to MORPHINE PUMPS but they had a great reaction to the Prialt - so could be worth a go??

I'm really sorry about the food tube - that must be really hard - I know several RSDers on them and they seem horrible! However, from everything that you have gone through you must have been a fighter and I reckon you'll be there at your sons graduation!! no problem!

We are all here for you - keep going with the Dragon - that's what I use most of the time and what I am using now - it is fine apart from it doesn't like some long words.

I have been at university since October and I am studying psychology. I shouldn't really of shared my story with you as you are going through so much - I just wanted to say that I can empathise with some of your situation and to never give up hoping - as Broken Wings said.

Sending you lots of love and hugs

Frogga xxxxxxxxxxxxxx