Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-21-2013, 12:14 PM #1
bfff2020 bfff2020 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 20
10 yr Member
bfff2020 bfff2020 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 20
10 yr Member
Default The last 7 weeks were amazing

7 weeks ago I by chance had to see a nurse practitioner as all the doctors were fully booked

As I chatted with the lady I was gobsmacked to hear her say 'I only know this much about it because I've had it' I couldn't believe my luck - what are the chances of bumping into someone who has had this let alone beaten it (so to speak). I could tell from the way she talked that this was no placebo game she's defo' been through it you can only tell if you have it in my opinion

Hers was diagnosed by her physiotherapist after not having the ability to walk for nearly 2 years (her legs) it was the persistence and 'forcing' of her physio' that helped her eventually get it to a point where she had full motion and capability back

An amazing story she admitted that there are good days and bad but it's nothing at all like it used to be, seems once your past the 'super pain' your OK

Now I'm a seeing is believing type of person so to have this experience (having met/talked with her) and know that you can recover and beat this thing has been invaluable

For the first two weeks I forced movement where I previously couldn't - my RSD is my hands and arms and the left is swollen and unusable 7/10 days. In that first two weeks things began to improve and again for the following two weeks and let me tell you yes it hurts even more to force past what you think is the worst pain but the more you do the easier it gets

It's been seven weeks and I truly believe that almost constant movement is the answer, my hands/arms still hurt but not as bad and more importantly my left or right don't swell up now at all

If I stop using them for any period of time it's almost like I can feel it rushing back to the pain level it used to be at - so I continue and use them almost non stop

I'm so lucky to have met this person and for her to have shared the story with me, I hope this helps some of you.

The first two weeks were the hardest and the first thing I do when I wake up is constant hand/arm exercises

I believe movement is the key - lots of it, too much of it even. I believe the overuse/movement is somehow managing to remind the brain that there's actually nothing wrong with the limb

I feel like I'm slowly but surely getting my life back, 8 weeks ago I had seriously considered asking them to amputate my left arm the pain was that bad - I'm very lucky to have met this NP

Any questions please ask, also I didn't have to take a break while writing this post - that's amazing too it would have taken me god knows how long a couple of months ago

Be well and believe
bfff2020 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dshue (03-24-2013), mollymoo123 (03-22-2013), SandyRI (03-22-2013)
 

Tags
crps, rsd


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Amazing MiaVita2012 Traumatic Brain Injury and Post Concussion Syndrome 2 01-17-2013 09:47 AM
Truly Amazing... DFW_Andy SCS & Pain Pumps 12 08-19-2012 10:25 PM
Most amazing kid Dmom3005 Bipolar Disorder 1 11-30-2011 08:27 PM
Amazing barbo Survivors of Suicide 2 06-24-2011 05:12 AM


All times are GMT -5. The time now is 02:32 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.