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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-21-2013, 12:14 PM | #1 | ||
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Junior Member
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7 weeks ago I by chance had to see a nurse practitioner as all the doctors were fully booked
As I chatted with the lady I was gobsmacked to hear her say 'I only know this much about it because I've had it' I couldn't believe my luck - what are the chances of bumping into someone who has had this let alone beaten it (so to speak). I could tell from the way she talked that this was no placebo game she's defo' been through it you can only tell if you have it in my opinion Hers was diagnosed by her physiotherapist after not having the ability to walk for nearly 2 years (her legs) it was the persistence and 'forcing' of her physio' that helped her eventually get it to a point where she had full motion and capability back An amazing story she admitted that there are good days and bad but it's nothing at all like it used to be, seems once your past the 'super pain' your OK Now I'm a seeing is believing type of person so to have this experience (having met/talked with her) and know that you can recover and beat this thing has been invaluable For the first two weeks I forced movement where I previously couldn't - my RSD is my hands and arms and the left is swollen and unusable 7/10 days. In that first two weeks things began to improve and again for the following two weeks and let me tell you yes it hurts even more to force past what you think is the worst pain but the more you do the easier it gets It's been seven weeks and I truly believe that almost constant movement is the answer, my hands/arms still hurt but not as bad and more importantly my left or right don't swell up now at all If I stop using them for any period of time it's almost like I can feel it rushing back to the pain level it used to be at - so I continue and use them almost non stop I'm so lucky to have met this person and for her to have shared the story with me, I hope this helps some of you. The first two weeks were the hardest and the first thing I do when I wake up is constant hand/arm exercises I believe movement is the key - lots of it, too much of it even. I believe the overuse/movement is somehow managing to remind the brain that there's actually nothing wrong with the limb I feel like I'm slowly but surely getting my life back, 8 weeks ago I had seriously considered asking them to amputate my left arm the pain was that bad - I'm very lucky to have met this NP Any questions please ask, also I didn't have to take a break while writing this post - that's amazing too it would have taken me god knows how long a couple of months ago Be well and believe |
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