Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-03-2007, 05:23 PM #1
Sydney Sydney is offline
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Default Also on many meds - didn't work, no emg- I agree

I too have been on the higest doses of about 35 pain meds, muscle relaxants, anti dep. None ever worked. I also was on 600 lyrica - didn't even know I was taking it. I have no reactions to high doses. My body metabolizes them very quickly so they are ineffective. I believe we would be considered "polymorphic". I read that somewhere.
I am back on lyrica again and going to go up to 900mg. or more. I know it is scarey but I am desperate and my Dr. is willing to try it as my metabolism is so unusual. Of course I have gained weight in the past 2 weeks and eat almost nothing.
Re: an EMG. I refused one at the Mayo Clinic and also at the local (supposedly expert) pain mang. Dr. They stick needles in you and then they give you elecric shocks. It is something like that. Goggle it and see more about it. With RSD you must be so careful not to allow invasive type procedures like that to be done.
Best wishes. I wish I could be more helpful but unfortunately I am "in the same boat" with pain meds. Nothing ever helps. I just take sleeping pill and go to bed to get away from the pain.
Good luck,
Sydney
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Old 05-07-2007, 07:12 PM #2
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Desi Desi is offline
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Sydney, My Dr. has me on 100 mg. neurotin in the afternoon.. percocetts, as needed and vicodin es.. then at night 200 mg. of neurotin. (the Neurotin helps me sleep like a baby) I hope this medicine still works. don't be afraid to ask for something more stronger for the pain, you shouldn't have to suffer needlessly! Love, Desi
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Old 05-07-2007, 09:37 PM #3
JOAN_M JOAN_M is offline
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I had a partial emg years ago and that was enough for me. it is needles and it records the nerve activity as a sound. if you hear all static you know the nerve conduction is like a radio ... no longer conducting the music from here to there ... mine was all static. it verified that my nerve activity was not going to return and that was what i wanted to know. so it was worth it to gain that information.
only do what tests you want. do your research. only take what meds work for you ... doctors often think they know best, they don't. you are your own best judge. joan
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