Hmm, some rights chimed in, so we are at :

left side - anywhere : 5
right side - anywhere : 4



Lower left : 5

Upper left : 0

Lower right : 2

Upper right : 2


(if I'm counting right, that is) well, so far it's pretty evenly split left to right, but so far it's a small sample size ...

Thanks everyone for sharing!

Mine was lower right tendon repair. Now, it's in all four and I'm being tested for ms. But mine spread to hips in both lower extremities.

TK

For the record, my dr thinks my rsd had started before the surgery so the repair aggravated it. :mad:

Left foot!

Started there then went up the leg to my hip across my pelvis. It then crossed over to my right foot. Somehow it also landed in my left eye.

Mine started after I fell while roller-blading. I had all the gear on. Thought I was pretty good at it. Had just learned a month before. Being over confident, I was zipping along too fast and hit a pebble or stick (?) on the pavement. Smack! Landed on my left side. Ruptured L5S1, fractured my left hip, which eventually caused a stress fracture in the base of my second metatarsal in my left foot. The CRPS hid out there till about 4 years later.

The cow story is by far the best one I've heard yet!

Lately I have been having trouble with spasticity in my hands/wrists. I see my Neurologist on Friday.

Hi sloRian
 

I have heard this too. I know I have PN, but may have RSD in left foot and ankle. Had no correct DX of Anterior tibial tendon disfunction. MRI showed 5 years later, three torn ligaments-tendons, not healing right. Had two surgeries for ganglion cysts that the roots were going into my joint in the ankle. I now have two more, and can't have the surgery because of the PN or RSD. I am better however as I have tried B12 shots and use the pain patches. I also had no fall or injury to account for the injury to my foot and ankle to begin with. Just adding information here, about where this started on me. I hope and pray it never spreads. ginnie

Mine started in my left hand after a burn injury. I kind of blew myself up!!! Its spread up my left arm, into my right hand, My entire Left leg and Right foot. WHen I have a bad day, I feel like its in my entire Left side.

Im also Left handed. I also wonder if there is a link between sides that get injured and what side you favour. I know I hurt my left arm because I naturally used my left arm to protect myself from danger. I Might have burnt the entire lenght of my arm, but at least it saved my face from much harm.

Mine started with the left inner ankle then spread to the left leg. Then spread to my left foot and right foot plus the toes and then the calves. The feet and toes have become horrible and of course the original inner ankle. Then the condition spread to my arms but to a less degree. At one time they thought I had it in my eyes. I also have PN and RSD

Started in left foot 30 yrs ago, into my ankle and up to mid calf now.

I have RSD in my left foot. The excruciating burning pain is eating away at me. I have lost the use of my foot. Mine came about after I was in an auto accident. I needed spinal fusion and immediately following my surgery my foot swelled and the pain never subsides. It has affected my enter life, left me permanently. I am at the mercy of narcotic meds...but the drs don't like to keep raising the dosage, meanwhile I suffer.

I'm so sorry that we're all here with this diseases :( but am grateful for this forum to share ideas and sympathy. It's amazing how when you're healthy, you just have no idea that there are all these people out there with all this pain ...

Updated info:

Lower left : 10
Upper left : 1
Lower right : 3
Upper right : 2

Feel free to check me, I could have missed someone. I'm basically going for where did it START, not where it is now. And it's definitely swinging towards what my doctor said - mostly starting in lower left. Obviously, this is a small sample size, but it might be the start of something triggering in some researcher's mind somewhere. I'll get this info back to my doctor when I get a few more people, since he was the one that first mentioned it.

Fantastic stuff. Absolutely ANYTHING that might point a researcher in the direction of new CRPS information has to be a good thing! :)

Just a thought tho, your thread title narrows the field a bit - might be an idea to rename it if poss to "Research info please - where did your RSD/CRPS start?"

Thanks.

Bram.