Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-07-2013, 10:16 AM #6
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catra121 catra121 is offline
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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Quote:
Originally Posted by babyblues3 View Post
Did you invest in anything like a paraffin wax thing? Or is there anything I can get.My fingers are so swollen they just don't bend.Have you had the nerve blocks?
I had nerve blocks...they are what caused the spread to my hands (and whole upper body) so that was the end of those for me.

I find that hot baths with Epsom salts are good for all my RSD areas. I also have found a lidocaine cream on amazon.com that is good on my hands for the pain. It doesn't help a LOT but it does take the edge off sometimes. I also have Voltaren gel (Rx) that helps with the inflammation if that gets bad.

But mostly...just keep moving. When it first started I did puzzles because my physical therapist told me that was great for my hands. Not only to keep them moving but also because putting the pieces in the place required control and precision movement that was good for me. I also do cross stitch and that helps...but I can't hold the frame with my one hand any more so I have to prop it on something or use a stand (because just holding it will cause my hand to freeze up). But the flexing is the most common thing I do on a regular basis just to keep my hands moving.

Oh...I also got Tommie Copper compression gloves that I like. They protect me from the cold and provide some warmth too. I don't know that I buy all the stuff they say about how good they are for you in terms of pain relief...but they do work better for me than just regular gloves...so it may be worth a try.
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