Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-07-2007, 03:08 PM #11
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and a pink umbrella drink

sending you lots of love and hugs

frogga xxxxxxxxxxxxxxxxxxxxxx
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Old 05-19-2007, 07:00 PM #12
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Default Hi Everyone,

Sorry I went off so abruptly but things just got too overwhelming and I was stressed really bad and still am having some bad days.

I took this time to finish moving, and I still have a storage unit to go through but I am going to start on it Monday. The kids have gotten moved and their house is sold as far as I can tell. The deal will be sealed Sunday so they will start looking for acreage to build and move my mobile on but I know I am looking at a year for that.

I like it here. I am close to everything and I have been going to the antique stores and I now have antiques in 3 of them so as they sell I will have a little income from them. I have also been asked to watch 2 of them certain days. I told both I will if I'm able to.

The VNS was turned on a month ago and has only been turned up once. My Dr. had to go out of town and he didn't want to turn it up and leave me in case something went wrong. I still have to have it turned up 3 more times. It does mess with my voice. I am worried about that. Bill always said my voice didn't carry and I didn't talk loud well now I talk even lower when it goes off. Even though it only goes off every 30 seconds out of 5 mins. It takes a while for my voice to come back up. As far as helping, no it's not yet. They said it could take up to 6 months or even a year. I get really stressed and that doesn't help. I'm still grieveing for Bill and I am also dealing with major pain. I tried to go off of my Methadone and the pelvic pain got so high it started making me suicidal. I went in to the Drs. office and he gave me some shots but with having to leave I couldn't keep getting them. When he gets back we will start them again. I want to get off of the Methadone. I am seeing RSD at times in my left arm and hand from the surgery so I am trying to calm it down. I am also dealing with the heart problems. I see the Cardiologist in June. I had to wait that long to get in to see the Cardiologist I want to see.

I deal with CFS so damn much it's not funny. A nurse had told me the summer made it worse, now I know she's right.

Jo, Big O has it's own brand of tires and they won't put on Firestone or the other one unless you special order them. I can't believe how they are with people. This town is so small that if the reputation follows them then they won't last here.

Jose, as always, I love to see you on here, you disappeared for quite sometime. As I always said, this is my family here but with what I am going through, it's just so hard to keep my head on straight. I have the best support system going so it's not that.

One of my best friends is moving 4 doors down from me and she also has RSD and Fibro and Lupus and other things so I am going to get her on here in the next few days.

Also, my Dr. has RSD in both feet. I just found that out last week and that really upset me. He is such a good friend to me and this worried me. We were talking about the problems we are having dealing with it. He can sure relate to me, but he always has, I just hated to hear this from him.

My Grandson's are doing great. They have 2 more soccer games and they both will go into football next. They spend a lot of time here. Thank God they are good kids. We had an upset yesterday though. Some boy brought a gun to school and when I got there the cops were having to scan all of them. They didn't find the gun but the boy has been arrested. This is a Middle School in a small town, doesn't matter anymore.

I don't know how often I will be on here for awhile but I just wanted to let you all know I still exist. LOL

Thanks for all of the replies and support.
Ada
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Old 05-20-2007, 01:18 PM #13
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Hi Ada! You sure have a lot on your plate dear one! I am so sorry that your having so much "going on" I just want to let you know that I care, and I want to give you a gentle hug. Love,Desi
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