Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-10-2013, 04:49 PM #1
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I'm so sorry and yes...I think MOST people of the non-RSD world think this way. Work comp will think that way because they latch on to any excuse possible to deny treatment. Even if it says anywhere in your records at all that you MIGHT have RSD they jump on that like, see...even the doctor is not sure. Oh...it sucks.

But hopefully this nurse or whoever is not a reflection of what your doctors think. I am amazed at how even good doctors can get stupid when it comes to RSD. And I understand to a degree that it's NOT a simple thing. We're all different, there's no conclusive test to prove or disprove RSD, it's a clinical diagnosis, etc. But why is THAT fact so hard for them to wrap their heads around sometimes? I guess they can feel almost as helpless as us at times when they run out of things to do for us.

I hope you get some help soon...I know things are terrible for you right now. Take care and good luck...you can vent any time here. We're here to listen and support.
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Old 05-10-2013, 08:59 PM #2
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Hey painman! Sorry that you have to deal with such stupidity, but I think we all have during our RSD journey. I had one idiot send me for that triple phase bone scan then tell me that it was normal, no RSD. He put in my chart that I cried when he told me I didn't have RSD and I was looking for someone to operate on my hand....what the??? I was upset because he couldn't tell me what was wrong and I specifically told him that I did not want surgery, which is why I went for his opinion (2 previous drs wanted to operate and they didn't know what was wrong). This happened in 2010, a year after I injured my hand and 19 years after I was first diagnosed with it in my face. I had the symptoms and finally got with the right dr, but it was too late for treatments to help me and spread had already begun!

I hope you don't have more issues with WC as I am sure it is difficult enough.

Wishing you the best,
Nanc
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