Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-08-2013, 03:49 AM #16
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Very true....BUT if they cc (send a copy) to Iain Stewart as well, then it won't matter as much. Plus the more people who shout something, the harder it is to ignore - we could do with getting a newspaper onside, there are several out there who seem to like a nice health-scare/weird science/conspiracy of silence type of story?! Not to mention a few TV doctors who could be petitioned to take up the cause?

The sad thing is that it is very easy for anyone to ignore a single person, or a few, but if enough folk stand up together then sooner or later people do take notice. Unfortunately it requires a lot of coordinated effort, and that's not an easy thing for a community like CRPS/RSD sufferers, who are statistically few in number, and already using their energy to fight through constant pain.

I am thinking (on the hoof, so it might be rubbish!) of perhaps a blog or website with different standard letters, posters, info etc available to copy, and lists of addresses and people to send them to? The hardest thing sometimes I find is concentrating for long enough to actually write what I want and make it good enough - maybe if all people had to do was copy the text, add their name and address and send it, it would be easier for more folk to do? We could maybe have a monthly 'target' person or organisation to send stuff to, so that our efforts had more impact in one place at a time?

I don't know what the answer is, but I'm keen to fight while I'm able to

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:50 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.