Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-26-2013, 05:58 PM #5
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Oh Angelina I'm so sorry it's not doing as you hoped yet... Maybe things will settle down after the first few days and you will feel a little better.

I read around a bit about SCS, and it seems that the positioning is all important, and that quite often the position has to be tweaked to find the optimum place where it gives relief where it is needed. Hopefully when you return for your evaluation they can work out what is going on and improve things.

It must be terrifying dealing with this alone, I think you are incredibly brave. Don't give up hope, it is very early days and you may yet be lucky with it .

Fingers still crossed here!

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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