I have muscle wasting, but only on my RSD limb. It is getting more noticeable. I'm sorry this is happening to you. Hopefully your doctor will have some answers.

Thanks for your responses,,,the thing is no doc has. Been able to figure out why this is happening, I have had every tx and blood test imaginable.. Iif no one can get to the bottom of this I am doomed!..I have an appointment w dr chopra the end of July,,,


Thanks,
Debbie

It would seem like it would be awfully fast for the RSD to be wasting at that rate. Maybe I'm wrong. I know for my limb that is wasting it seems to be a slower process. Originally it seemed only to be in the hand and lower arm. I am now noticing it in the upper arm, but more like the hanging skin.

I really hope they figure it out!

I'm sorry that the docs haven't been able to figure out the cause...but do they have any suggestions as far as what to do for it? I mean...I get that if it's caused by some underlying thing then you need to get treatment for that...but the fact of the matter is that it IS happening and what should you be doing NOW to fix it or at least slow down the process. If it is caused by the RSD (a definite possibility) then there's no cure for that and the question still remains the same: what do you do about the muscle wasting?

Have you spoken to a physical therapist or even a personal trainer about what would be some good options for putting on muscle mass? If a doctor can't help you then maybe a consultation with someone in those fields could at least give you some options. I recently started working with a personal trainer to get some exercises tailored to my specific needs and limitations to help me regain some strength. The woman I am working with has experience working with people who have disabilities so she's really good at working with me around my needs. The key being that these exercises are all tailored to my specific goals of developing more muscle and strength...as opposed to me doing things on my own which may or may not be helping me actually achieve what I want. Does that make sense? Not sure if it would help in your situation or not but it might be worth checking in to. Many personal trainers will do free consultations where you could just go talk with them and see if they might be able to help or not. If not...then nothing lost except some time.