Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-12-2013, 12:30 PM #2
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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It's so hard isn't it, makes me mad...

Your life is effectively changed and massive chunks of it taken away without your permission, by this horrible painful condition - and then THEY have a hard time with it... Don't get me wrong, I sympathise with my husband, his life has been changed by this too - but as you say, I don't expect him to do anything I wasn't doing myself before this.

My husband has a few times where he gets fed up with it all, and we end up having a row, it's always because he feels put upon and that it's unfair on him, and the money aspect of me not working as much never helps... He apologises in the end, and we talk it through, but I never forget what was said, and i feel so guilty. Fab.

You're not alone on this one, I think we all have to deal with family and friends not understanding that so often we just CAN'T do something, even if there's nothing to see the pain can still be horrible. And after an injury like you've got now, you do have to be soooo careful of it. They just don't get it, no one does unless they're dealing with it themselves.

All you can do is try to talk it through...good luck, and I hope things are brighter very soon for you all. It must be so tough to deal with on top of everything else.

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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