Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-12-2013, 12:00 PM #1
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default Need to vent....sorry :)

So before the RSD started, I took care of the house. Usually 9 times out of 10 I would come home cook diner for the family do the dishes, clean whatever would need to be done. Me and my fiance worked at the same place held the same title and hours.So we both would have worked all day. While I as doing the cooking and cleaning my fiance would go into the bedroom or living room and play an online war video game. Sometimes He wouldnt even stop playing and I would bring him dinner. A lot of times really.

Well the RSD in my entire left arm made that very difficult, if not impossible most times. Now I have a different ob and work much after I dont gt off until 8 pm and because of the drive time I get home around 9pm.

So now he is responsible for cooking dinner, doing the dishes and making sure the younger kid bathes and what not. Well from my previous post last night you can see I ripped off half my fingernail. Which of course i flaring up my arm now. So we had bought a bunch of paper plates to help out on the level of dishes (sorry trees we do use the recycled ones though). So last night I didnt really eat much just hi and the kids I made a sandwich, on a paper plate. Now hes angry because I didnt want to do what very little dishes there were because of my arm and finger!

For almost 5yrs I was the one who did all the work while he played a stupid damn game. I am so angry, I usually am very easy going but this really ****** me off. I know a "tit-or-tat" isn't helpful but I mentioned that I had done exactly what he does now for 5 yrs, so I understand how he feels.....he just got more angry and said fine I'll take care of it. Not copping to that fact that he barely had to do anything like that for the Past 5yrs!

ANd the weird thing he when we moved in together he was wonderful at helping around the house, infact he was neater than I was!

Was is just complacency that lulled him into this lazy pattern or is he jusr being an ***?
CRPSsongbird is offline   Reply With QuoteReply With Quote

advertisement
Old 06-12-2013, 12:30 PM #2
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

It's so hard isn't it, makes me mad...

Your life is effectively changed and massive chunks of it taken away without your permission, by this horrible painful condition - and then THEY have a hard time with it... Don't get me wrong, I sympathise with my husband, his life has been changed by this too - but as you say, I don't expect him to do anything I wasn't doing myself before this.

My husband has a few times where he gets fed up with it all, and we end up having a row, it's always because he feels put upon and that it's unfair on him, and the money aspect of me not working as much never helps... He apologises in the end, and we talk it through, but I never forget what was said, and i feel so guilty. Fab.

You're not alone on this one, I think we all have to deal with family and friends not understanding that so often we just CAN'T do something, even if there's nothing to see the pain can still be horrible. And after an injury like you've got now, you do have to be soooo careful of it. They just don't get it, no one does unless they're dealing with it themselves.

All you can do is try to talk it through...good luck, and I hope things are brighter very soon for you all. It must be so tough to deal with on top of everything else.

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 06-12-2013, 01:02 PM #3
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

First of all, sorry about your finger and arm. I know it has to hurt like crazy! A few years ago, I got my foot caught under a door at work. I had sandals on and it ripped the nail halfway off on my second toe (the dr removed it the rest of the way). Thankfully it did not aggravate my RSD...a later injury to that same foot did.

Secondly, do not apologize for venting, you know you can do it here anytime! I think you need to sit your fiancé down and have a serious heart-to-heart conversation with him. If he doesn't get it now, then you need to help him get it Something that helped me with some family members is showing them the McGill Pain Index. My husband said it was an eye opener and really shows the level of pain, which is really hard for those without RSD to comprehend. Thankfully my husband understands and takes care of all those things I can no longer do...like housework, grocery shopping, etc. He also drives me everywhere!!

I wish you luck on this difficult situation. You have enough to deal with already!
Nanc
Nanc is offline   Reply With QuoteReply With Quote
Old 06-12-2013, 02:15 PM #4
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

I second the McGill Pain Index thought! My family on my husband's side just really didn't get it until we showed them that.
SloRian is offline   Reply With QuoteReply With Quote
Old 06-12-2013, 03:05 PM #5
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default Venting o.k.

Just like Nanc. said. I'm sorry your guy is being such a jerk. Mine has had his moments as well. I think sometimes they fall into "selfish" mode and they don't "get it" until something snaps them out of it.
As if being in so much pain isn't hard enough to push yourself through, then the emotional pain just makes it that much harder.
I hope he comes to understand and appologizes. Have you been to RSDHope.org? There's some really good information on the site to help family and friends try to understand.
Hang in there.
AZ-Di is offline   Reply With QuoteReply With Quote
Old 06-12-2013, 06:44 PM #6
Kevscar
Guest
 
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default

Get him to watch this

http://www.youtube.com/watch?v=MviVcjWZDts
  Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (06-13-2013)
Old 06-14-2013, 02:07 AM #7
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default

Thanks everyone! I have unfortunately shown him the McGill pain scale, Had him look at RSDhope, all sorts things. I think he just really doesn't get it. He figures he can deal with pain, so why cant I? Arrg. Also I was actually more mad when he insisted in playing vide games until 230am in the bedroom where the good tv is, I cant sleep easy on our couch. So I finally made ho get off and told him I was mad. He said " why couldn't u just nap on the couch till I was done".... IO seriously don't know why hes been so self-centered lately.....


It is really helpful to have you all understand...at least someone gets it
CRPSsongbird is offline   Reply With QuoteReply With Quote
Old 06-14-2013, 10:44 AM #8
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

I'm kind of going through the same thing. I just had surgery Wednesday and I feel like I'm sitting here flailing. It's annoying and it just makes me more depressed. I just want to bury my head in the covers and never come out. If you, or anyone ever want to talk, just message me.

TK
tkayewade is offline   Reply With QuoteReply With Quote
Old 06-14-2013, 02:10 PM #9
anon6715
Guest
 
Posts: n/a
anon6715
Guest
 
Posts: n/a
Default

I'm sorry you are going through this. This disease is not fair to our families and I'm sure it is frustrating to have the division of labour shift like that. But it doesn't seem like the division of labour was very fair before and that was by choice, whereas you can't help having the limitations you have.

  Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Need To Vent FeelinGoofy Tourette Syndrome 11 10-25-2011 10:47 PM
Just Need to Vent teacherfeet Peripheral Neuropathy 1 05-19-2011 11:10 PM
just a vent... Prof de Rien Reflex Sympathetic Dystrophy (RSD and CRPS) 10 04-25-2011 08:18 PM
Need to vent PegMeerkatz Alcoholism, Addiction and Recovery 2 11-22-2010 10:19 PM
Just need to vent. natscoolma Traumatic Brain Injury and Post Concussion Syndrome 1 06-19-2010 04:50 PM


All times are GMT -5. The time now is 03:49 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.