Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-06-2013, 05:36 AM #1
Brambledog Brambledog is offline
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Default Petitions

Hope this is ok, if not then apologies!

I just came across this CRPS/RSD petition online, and it only has 42 signings!! It is about raising awareness worldwide so that those suffering undiagnosed can get the treatment they need...seems a fair point to me

http://www.change.org/en-GB/petition...ross-the-world

If you can read it and then its up to you whether to sign it and share it.

If anyone else knows of other petitions, maybe they could be posted here? I'd like to read them and decide for myself, and those that don't want to can always just ignore the thread

Hope everyone out there is having a better day,

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 06-06-2013, 07:46 AM #2
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I've signed it. Every little helps!
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Old 06-06-2013, 07:59 AM #3
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It's one of 9 I started last year. I asked American RSD, Org RSDSA and Howard Blakes site to help. 5 other webistes it was on this forum and 2 or 3 others 200+ friends timelines on facebook and in 48 groups with over 10,000 members. The US govenment one only needed 25,000 signatures in 30 days, less than 800 signed and only 32 went on to signed them all
Original post here
http://neurotalk.psychcentral.com/thread180035.html
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Old 06-06-2013, 12:44 PM #4
KathyUK KathyUK is offline
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Well I'll bloomin' sign it
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Old 06-06-2013, 12:56 PM #5
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If you want to sign and promote this one has the most
http://www.causes.com/actions/170067...dwide-petition
I also got a letter 6th feb on behalf of the EU secretary general say my petiton had been passed for consideration to the Committee on Petitions but was told it could take a relatively long time due to the number. Guess he wasn't joking
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Old 06-06-2013, 01:58 PM #6
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Quote:
Originally Posted by Kevscar View Post
If you want to sign and promote this one has the most
http://www.causes.com/actions/170067...dwide-petition
I also got a letter 6th feb on behalf of the EU secretary general say my petiton had been passed for consideration to the Committee on Petitions but was told it could take a relatively long time due to the number. Guess he wasn't joking
Done

Oh by the way, still haven't heard anything from my MP regarding the call for a Commons debate. Damn joke. I'm going to contact him again....grr...

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 06-06-2013, 08:08 PM #7
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Signed.
Deb
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- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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Old 06-06-2013, 10:05 PM #8
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Brambledog If they ae lib or con you might want to add "it is my understanding of Parlimentary rules that a member of the ruling party is required to take up his/hers constituents concerns with the appropriate Mnister
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Old 06-06-2013, 10:16 PM #9
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I signed and am placing url on my facebook page for RSD and on my Twitter.
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Old 06-06-2013, 10:47 PM #10
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Default petition

Absolutely I signed it. I just didn't want "causes to have access to my facebook info. sorry. I also donate to RSDHope.org. I'm not sure how much attentin they get in the government and medical communities.
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