Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-21-2013, 03:51 AM #1
KathyUK KathyUK is offline
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http://www.ketaminebladdersyndrome.c...anagement.html

While it might be the CRPS, ketamine comes along with this risk and I wouldn't risk presuming it to be spread. I have been considering asking about ketamine for my pain but this thread confirms my concerns about it. I would think that any good doc prescribing ketamine would want to play it safe should symptoms such as these arise. My advice would be to make an urgent appointment with the prescribing doctor. I have read of a few docs blaming bladder symptoms on CRPS spread after ketamine treatment and this concerns me a lot. How on Earth do they know it's not the ketamine when it's such a common problem or are they covering their backs in fear of a legal claim? After all noone can prove it's not CRPS. I wonder if there's a way to prove whether it is the ketamine or not. First step is to discuss it with the doc and don't accept anything as fact without a solid explanation and/or investigation. I can Iimagine how much easier it would be to accept the idea of CRPS rather than ketamine bladder, I know if ketamine was helping my pain I wouldn't want to hear it might be harming me either. I genuinely hope that regardless of cause the problem gets better for you asap xxx
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Old 06-22-2013, 10:49 PM #2
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I have CRPS of the bladder. It spread there after an injury to my L5S1 and left foot 2nd metatarsal base fracture. After a couple surgeries and minimal physical therapy, I was left with CRPS. I did not know though. I had to wait the precursory amount of time and visit a certain number of doctors. Once the CRPS was diagnosed, my urologist said, oh yeah, all your bladder problems are connected to the neuro problems caused by the CRPS.

My symptoms include frequent infections, burning pain, fever, but I have hematurea (blood in the urine), pressure, inability to urinate/empty all the time. When i get an infection my Doctor calls in an antibiotic for me. In order to prevent the infections, I catheterize 3 times a day. Cathing is really not too bad. You can buy disposable catheters through an online pharmacy fairly inexpensively. Your nurse can describe how to insert the catheter, and in short time it becomes second nature.

I do NOT take ketamine yet. I am researching it as an option. I do have a lengthy list of medications that I am on. To list a few: fentynal patch, baclofen pump and oral, oxicodone, tizanidine, there is another 'T' I can't remember the name, cymbalta, lyrica, zipsor, and the list goes on...

Hope this helps. Open to more questions; just ask.
Hope you will be feeling better soon.
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Djhasty
- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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