Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-25-2013, 05:52 AM #3
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Oh dear, it's horrible trying to be normal isn't it? I'm crap at it myself lately.

We all try to pretend to be 'normal' when we're out, don't want to cause a scene etc - I think you're very courageous to have gone when I know you've been feeling rubbish lately. You gave it a go and tried your best, the fact that the CRPS wouldn't let you do what you wanted is not your fault.

As for your doc, it makes me so mad when there's this complete failure on a doctors part to recognise the importance of pain relief in CRPS. Without it we are in hell, and all this 'concern' about dependency, etc is pathetic when dealing with a monster like this. I'm glad your doc is nice, but all the understanding in the world can't provide pain relief. If your GP is too scared to deal with it himself, it sounds like you need to tackle your pain team and maybe even find a new one to guide your GP with your meds. Saying 'if you're tolerant to one med you're tolerant to them all' is rubbish. And the bit about only counselling helping is laughable. There must be more they and your GP can do to support you.

Moving must have been a difficult decision, but it sounds like you weren't happy in your life in Yorkshire, which wouldn't have been great to continue with while dealing with your health concerns, but I understand your frustration if your previous pain team dealt with things better. Is there any way you could contact your old pain doc and ask their guidance on dealing with the new one?

I hope you have a better day Kathy, about time you had a break from this...

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking forward Junebj New Member Introductions 1 01-18-2008 01:36 AM
Pay It Forward DMACK Survivors of Suicide 1 12-12-2007 08:18 PM
what doc can I see to move forward??? thunder92 Thoracic Outlet Syndrome 19 09-14-2007 12:21 PM


All times are GMT -5. The time now is 10:53 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.