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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Senior Member
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Oh dear, it's horrible trying to be normal isn't it? I'm crap at it myself lately.
We all try to pretend to be 'normal' when we're out, don't want to cause a scene etc - I think you're very courageous to have gone when I know you've been feeling rubbish lately. You gave it a go and tried your best, the fact that the CRPS wouldn't let you do what you wanted is not your fault. As for your doc, it makes me so mad when there's this complete failure on a doctors part to recognise the importance of pain relief in CRPS. Without it we are in hell, and all this 'concern' about dependency, etc is pathetic when dealing with a monster like this. I'm glad your doc is nice, but all the understanding in the world can't provide pain relief. If your GP is too scared to deal with it himself, it sounds like you need to tackle your pain team and maybe even find a new one to guide your GP with your meds. Saying 'if you're tolerant to one med you're tolerant to them all' is rubbish. And the bit about only counselling helping is laughable. There must be more they and your GP can do to support you. Moving must have been a difficult decision, but it sounds like you weren't happy in your life in Yorkshire, which wouldn't have been great to continue with while dealing with your health concerns, but I understand your frustration if your previous pain team dealt with things better. Is there any way you could contact your old pain doc and ask their guidance on dealing with the new one? I hope you have a better day Kathy, about time you had a break from this... ![]() Bram ![]()
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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