Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-05-2013, 01:33 AM #9
momofrsd momofrsd is offline
Junior Member
 
Join Date: May 2012
Location: El Dorado HIlls, CA
Posts: 24
10 yr Member
momofrsd momofrsd is offline
Junior Member
 
Join Date: May 2012
Location: El Dorado HIlls, CA
Posts: 24
10 yr Member
Default

Quote:
Originally Posted by katiek View Post
Hi. I was wondering how people explain crps to others. I moved to australia 4 years ago and am due to go home to the uk for a wedding next year. My concern is that when i left my crps was very mild and most people didnt know i had anything out of the ordinary wrong with me. After a flare up a few years ago the crps has spread. I walk with a very noticeable limp and sometimes use a cane. I have limited use of the effected arm. But my main concern is the permenant tremours and speech problems. I should be feeling excited about seeing my family and friends but i am dreading it. Does anyone have any advice
I have had to help my 14 year old with this issue and explaining it to her friends and teachers at school. Basically your pain centers in your brain do not know how to shut off. They do not understand that you do not have a visible "injury" but your brain is telling your nerves that you do, therefore it affects your ability to control the muscles in your body (walking, talking, using your arm) since all muscles are controlled by nerves. Your brain and nerves continue to think you have an injury and way down at the cellular level they are working as if you do, releasing chemicals that cause pain, and also not allowing your pain pathways to shut off.
I hope this helps. I know it has for my daughter, and it has helped others understand how complex our brain really is! GOOD LUCK.
momofrsd is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
People with full body CRPS pls respond. getwellsoonerorlate Reflex Sympathetic Dystrophy (RSD and CRPS) 7 01-18-2016 03:01 PM
Do people with tremor dominant PD respond to different meds than people with stiffne trixiedee Parkinson's Disease 29 03-05-2013 11:52 AM
Rates of People on Disability are going up: This tries to explain why. Mari Bipolar Disorder 2 11-18-2010 03:58 PM
How do you explain CRPS to your friends? rogerc Reflex Sympathetic Dystrophy (RSD and CRPS) 18 05-29-2009 07:48 PM


All times are GMT -5. The time now is 03:55 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.