Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-09-2013, 08:45 AM #1
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Originally Posted by cozyc View Post
I don't know if any of you else feel this way from the neurotin or maybe from the RSD but I feel like I can't get things from my brain to out I of my mouth or on paper. Sometimes I know a word I'm trying to say but I can't speak it and wen it comes to writing a response on here, there are so many more things I wanted to say in my last response but I can't focus enough to really articulate it. I wanted to respond to more specific things that you guys said but if I tried to I back and look at them I would get lost in my train of thought. Besides the fact that since my RSD is in my upper extremities, that typing in general is much more difficult. Using my iphone in small amounts is the easiest by far.

Do any of you have these issues? I have heard about how bad the neurotin is for your brain long term and I would like to not be on it anymore but I need to see another doctor to get into another med. I had first started on amitryptyline-which didn't help at all, then lyrica-which made me feel constantly hung over, and then neurotin. It was really bad at first because I was really dizzy and tired all the time but it helped the most with the pain. I then would try to go on and off of it because I hated being so tired and in a brain fog. I would be ok for two days and felt mentally normal but then the pain would creep up and then be consistently unbearable and I would take it again. Now I can't go back a couple of hours of my dose time without being in bad pain.

My pain is always at its worse at night and when I wake in the morning my whole body is so heavy. The morning feeling is new but I think it's connected to me consistently taking my neurotin now. I'm always in a fog, I sound like a druggie and tend to mumble more. I fumble on words maybe 5 times a day sayings, "um um" , trying to get the word out-and then I just give up.

Can anyone else relate to this?

Thank you
I can relate. I'm not taking Neurontin anymore (haven't for a few years now) but lately this is one of my symptoms that has been getting worse. I would say maybe I'm just getting old but at 29 I don't think that's really it. I do know that CRPS/RSD can cause this...but many meds can also put you in a fog which could be making it worse.

I know that I haven't been able to actually read a book in several years now and that used to be one of my favorite things to do. I end up having to reread entire paragraphs and pages because I just can't focus on it and my comprehension sucks on anything longer than a couple pages. I have found that I can LISTEN to books though with no issues...so I have a membership to audible.com and get my books that way.
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"Thanks for this!" says:
Djhasty (07-09-2013)
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