Originally Posted by cozyc

I don't know if any of you else feel this way from the neurotin or maybe from the RSD but I feel like I can't get things from my brain to out I of my mouth or on paper. Sometimes I know a word I'm trying to say but I can't speak it and wen it comes to writing a response on here, there are so many more things I wanted to say in my last response but I can't focus enough to really articulate it. I wanted to respond to more specific things that you guys said but if I tried to I back and look at them I would get lost in my train of thought. Besides the fact that since my RSD is in my upper extremities, that typing in general is much more difficult. Using my iphone in small amounts is the easiest by far.

Do any of you have these issues? I have heard about how bad the neurotin is for your brain long term and I would like to not be on it anymore but I need to see another doctor to get into another med. I had first started on amitryptyline-which didn't help at all, then lyrica-which made me feel constantly hung over, and then neurotin. It was really bad at first because I was really dizzy and tired all the time but it helped the most with the pain. I then would try to go on and off of it because I hated being so tired and in a brain fog. I would be ok for two days and felt mentally normal but then the pain would creep up and then be consistently unbearable and I would take it again. Now I can't go back a couple of hours of my dose time without being in bad pain.

My pain is always at its worse at night and when I wake in the morning my whole body is so heavy. The morning feeling is new but I think it's connected to me consistently taking my neurotin now. I'm always in a fog, I sound like a druggie and tend to mumble more. I fumble on words maybe 5 times a day sayings, "um um" , trying to get the word out-and then I just give up.

Can anyone else relate to this?

Thank you

Originally Posted by Ccm47

To echo the others who have responded, I too am sorry you have had to take this journey. My experience has been similar, except my pain (luckily) has been relatively mild - still able to work and do my "activities of daily living." But similar in terms of delay diagnosis, nerve blocks, neurontin etc. I also only recently joined this board.

I started neurontin a month or so ago, and found that coffee in the am has helped a lot with the fogginess at work. I had given up coffee as part of my new years weight loss resolution (Because of the cream, which I don't like coffee without) but started back up after going on the neurontin.

Don't know if this helps you, and some others have said people with RSD/Crps should stay away from caffeine, but I need to be sharper at work, so I am taking the risk. Plus, between the nerve blocks and neurontin, I've been sleeping better lately anyway.