Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-10-2013, 03:17 PM #11
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Originally Posted by Kevscar View Post
This is the Walker I want, now how do I get the government to pay for it.

http://www.luckyrob.com/wp-content/u...0/08/At-At.jpg
Okay that is totally awesome (& funny) and I bet you get great parking w/ that too!
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Old 07-10-2013, 03:37 PM #12
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Thanks Vrae and yes, it is definitely a blow to the ego. I am 46 and about cried at PT while trying this style rollator out. I thought, I am only 46 and this is not where I thought I would be at this age. I stopped working at the end of Dec, which has been a huge adjustment for me and now this walker....

Glad you were able to retire your walker and can use a cane. I can't use a cane because my RSD is in both of my hands, shoulders and left arm.

I'm 44 now and my condition is deteriorating, what seems to be more rapid than ever. I am concerned that since my arms, hand, wrists are involved now and not just my legs, that if a walker is needed, not quite sure it will even work for reasons you motioned. I get by w/ a cane and snag an electric scooter when available at stores when shopping. This too was an exercise in getting over any vanity I might have had left.

I can totally related to feeling the need to cry as we progress to things we didn't think we'd need until MANY more years down the road. I remember the day I got my handicap plates. I wasn't even 40 yet and it was devastating to me. I cried all the way home. Don't get me wrong, I was grateful and all, but devastated just the same.

I THINK I'm getting better at just renouncing myself to whatever is needed to get through any given situation or day. But inevitably life has a way of smacking you down and putting reality square in your face.

Anywho, I don't mean to sound like a downer. I'm just having a hell of a day with the movement disorder part of my CRPS. Tremoring like CRAZY and muscle spasms galore. <sigh>

Glad your feeling better today and again I hope the tests come out favorable for you!
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Old 07-10-2013, 05:02 PM #13
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I got my rollator 2 years ago...so I was 27. I hate that I need it but it gives me freedom that I wouldn't have otherwise. I bought mine on amazon.com but needed one for shorties since I am only 5ft tall. Mine has the 8 inch wheels and it has a canvas basket so that it folds up easy to go in the trunk. Cost me a little over $100...totally worth it for me.

Helps to have a bit of a sense of humor. Every time I am at work and I see an elderly customer walking towards me with a walker I think, "BATTLE!" (like in the movie Michael with John Travolta playing an angel). Thank goodness it never comes out my mouth...but I can't help but smile and chuckle...lol!

I'm just grateful for all the things I can do because I have the walker...helps me to keep things in perspective. It does take some getting used to...but things really are so much easier with the walker for me. I hope yours helps you just as much.
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Old 07-10-2013, 05:06 PM #14
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Originally Posted by Vrae View Post
I'm 44 now and my condition is deteriorating, what seems to be more rapid than ever. I am concerned that since my arms, hand, wrists are involved now and not just my legs, that if a walker is needed, not quite sure it will even work for reasons you motioned. I get by w/ a cane and snag an electric scooter when available at stores when shopping. This too was an exercise in getting over any vanity I might have had left.

I can totally related to feeling the need to cry as we progress to things we didn't think we'd need until MANY more years down the road. I remember the day I got my handicap plates. I wasn't even 40 yet and it was devastating to me. I cried all the way home. Don't get me wrong, I was grateful and all, but devastated just the same.

I THINK I'm getting better at just renouncing myself to whatever is needed to get through any given situation or day. But inevitably life has a way of smacking you down and putting reality square in your face.

Anywho, I don't mean to sound like a downer. I'm just having a hell of a day with the movement disorder part of my CRPS. Tremoring like CRAZY and muscle spasms galore. <sigh>

Glad your feeling better today and again I hope the tests come out favorable for you!
I have it in my ankle (where it started) my RSD also spread to my hands, arms, and upper body. It doesn't take much strain on a regular basis to use the walker...I find it is a lot easier on my upper body than using a cane. This is because MOST of the time all I need is a light touch with both hands to push the walker but it helps with the balance. Even that light touch takes a lot of weight off the ankle too. When my ankle flares bad to the point that I can't hardly walk at all...then yeah...the walker is hard on my hands and arms. Also...walking on surfaces like cobblestones or anything that isn't smooth is also hard because the vibrations hurt my hands and arms. But 99% of the time I have no issues using the walker with RSD in my upper body.
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Old 07-11-2013, 10:52 AM #15
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Originally Posted by Vrae View Post
I'm 44 now and my condition is deteriorating, what seems to be more rapid than ever. I am concerned that since my arms, hand, wrists are involved now and not just my legs, that if a walker is needed, not quite sure it will even work for reasons you motioned. I get by w/ a cane and snag an electric scooter when available at stores when shopping. This too was an exercise in getting over any vanity I might have had left.

I can totally related to feeling the need to cry as we progress to things we didn't think we'd need until MANY more years down the road. I remember the day I got my handicap plates. I wasn't even 40 yet and it was devastating to me. I cried all the way home. Don't get me wrong, I was grateful and all, but devastated just the same.

I THINK I'm getting better at just renouncing myself to whatever is needed to get through any given situation or day. But inevitably life has a way of smacking you down and putting reality square in your face.

Anywho, I don't mean to sound like a downer. I'm just having a hell of a day with the movement disorder part of my CRPS. Tremoring like CRAZY and muscle spasms galore. <sigh>

Glad your feeling better today and again I hope the tests come out favorable for you!
Vrae, so sorry you are having a more difficult time here lately. Unfortunately, I can relate Seems like my condition is deteriorating rather quickly too.

I wasn't as upset when I got my handicap placards, I knew I really needed them and I had them off and on in the past with major knee surgeries. The only difference now is that they are not temporary.

I have RSD in my face, both hands, both shoulders, left arm, left leg, both feet, abdomen and head. I think I will be able to get by with the walker for now. Like Catra says, it just takes a light touch to move it. If I have to grip harder and lean on it more, then I may have a problem!

And thanks, I hope my tests come back ok too....I just hate waiting!

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Old 07-11-2013, 11:03 AM #16
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Originally Posted by catra121 View Post
I got my rollator 2 years ago...so I was 27. I hate that I need it but it gives me freedom that I wouldn't have otherwise. I bought mine on amazon.com but needed one for shorties since I am only 5ft tall. Mine has the 8 inch wheels and it has a canvas basket so that it folds up easy to go in the trunk. Cost me a little over $100...totally worth it for me.

Helps to have a bit of a sense of humor. Every time I am at work and I see an elderly customer walking towards me with a walker I think, "BATTLE!" (like in the movie Michael with John Travolta playing an angel). Thank goodness it never comes out my mouth...but I can't help but smile and chuckle...lol!

I'm just grateful for all the things I can do because I have the walker...helps me to keep things in perspective. It does take some getting used to...but things really are so much easier with the walker for me. I hope yours helps you just as much.
Hi Catra! Thanks for your input and perspective. I am glad that your rollator helps you so much!!

That is so funny..."BATTLE" I saw that movie again recently...LOVE it!! Now when I come face-to-face with someone else using a walker, I will think of this
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