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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Hi, I was hoping someone maybe able to give me some advice. I was recently referred to a psyc for help with anxiety, depression and cognitive behaviour therapy. I have only had one appointment with him but I really don't want to go back to see him. I told him about my crps and how I have a low tolerance to medication and haven't found one that works. He said that as I have anxiety I proberly look for side effects. I informed him that in the past I have developed blisters in my mouth form endep and I was once given guinethadine which caused a anaphylactic shock, I had to carry a epipen with me for a few years. He still felt that my reactions were down to the fact I believed it would happen. I also discussed my insomnia which he informed was learnt behaviour. I sleep very well when the pain is mild and can't sleep when the pain is bad. Again I informed him of this it seemed to have fallen on deaf ears. He spent most of the time telling me about crps, most of his information was wrong on several times I corrected him which he didn't take to kindly too, I feel really uncomfortable about seeing him again. I wondered if anyone else has had problems like this and if anyone lives in perth Australia could they maybe recommended someone. Thanks
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"Thanks for this!" says: | ginnie (11-01-2013) |
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#2 | |||
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Senior Member
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I don't have any recommendations on who you should see...but you need to not go back to this guy. If you don't click...he can't help you. If you don't trust him (and I don't think you should based on what you posted)...he can't help you. If he can't help you...then you shouldn't go back.
This goes for any doctor you see. Some doctors work out great for some patients and not for others. There is a chemistry there that is important and every patient has different needs both physically and emotionally that have to be met for a doctor to successfully treat them. Take care. |
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#3 | ||
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What a complete jerk this guy is
![]() I've seen several docs who claimed to know about CRPS but clearly didn't know it very well when it came right down to it. The problem is that it is a rare condition and few docs have the time we all do to really research it and learn about treatments etc. it's frustrating and scary though, you start to wonder who you can trust to treat you. If you know he was wrong about you on so many levels, then ignore everything he said and find another psych who can help you deal with living with this, and not make you feel worse. Good luck ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#4 | ||
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Guest
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I had the head phsychatrist tell me the spread happened because I knew it could, told her I knew I could win the lottery so why hadn't I. Never saw her agian
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"Thanks for this!" says: | RSD ME (11-04-2013) |
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#5 | ||
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Senior Member
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Quote:
![]() Why do they always have to turn it around and put it on US as the sufferers? Bit twisted and mean, at the very least. I had my first pain doc tell me that it was 'up to me' and 'I could beat this if I wanted to' - so of course when it carried on getting worse and spreading I felt it was my fault for not trying hard enough ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#6 | ||
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Junior Member
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Thanks for the replies. I spoke with my OT who said not go back to him. She is going to try and refeer me to the psyc at the hospital who understands that it isnt in my head. I was really fustrated after seeing the guy it just reminded me of all the times i had seen drs that rolled their eyes and didnt beleive me. I feel alot better knowing i wont se him again
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#7 | ||
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Senior Member
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Quote:
bwahahahahaha !
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. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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#8 | ||
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Elder
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#9 | ||
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Junior Member
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I have an appointment with my new psych on Wednesday, so will report back. It is so frustrating at the moment dealing with the physical aspect is one thing, then the mental issues rear their head. My anxiety has been quite bad recently. I am currently on income protection and the company placed me under surveillance, this has caused major issues, whenever I leave the house I think I am being followed. Not a great feeling. I am hoping that the psyc might be able to help me out with this. Also I was wondering if anyone else has developed compulsions. I find myself doing things such as checking I locked the car or house 5 times. I do other strange things too, my husband said maybe it is because I am sort of in control of those things where as I have no control over my body at the moment. Has anyone experienced this
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#10 | ||
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Elder
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People do not experience anaphylactic shock, or things like angio edema, just because they think it. This is a very serious thing that happens that can threaten a life. Go to another doctor that takes what you say seriously. These are NOT mental issues, but an alergic reaction. I too carry an Epi pen. You have to find a doctor that doesn't talk "down" to you. You deserve to be taken seriously. Docs like that make the situation worse. Hope you can find someone new to help you. We are here too at NT to listen anytime. Ginnie
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