you guys are so awesome. thank you so much. I found a lidocaine patch, but still struggling both physically and waring with myself about ER. pretty humiliating to for the first had to have my husband to help me pee. I cant really type write now...

Vrae, I've only just got to this thread this morning, I do hope you are feeling a little better by now, whether that's from going to the ER or your own meds working...

I'm so sorry you are dealing with so much going wrong with your body right now. Things will calm down again though, just hang on to that belief right now, I know the pain must be terrible and frightening

Good luck, be thinking of you

Bram.

Vrae, I am sorry that you are having such a hard time right now. I hope you are getting some relief and feeling better.

Take care,
Nanc

So I was losing my mind in pain last night and out of desperation made this post. Now that I have regained some kind of composure, and not so heavily medicated, I thought I would give a quick update.

Thank goodness I had the lidocaine patch, although it only took the edge off. I also had a toilet riser with handles, I think that’s what it’s called. Either way, I had that and a walker in storage, that at 1 a.m. my husband dug out for me to use. I had these things from when I had my back surgery back in 2004 (that started my CRPSII). As much as I hate these devices because I feel like I’m 80+ y/o, they sure are making things easier, and ultimately makes me more independent.

My back is still very irritated but I am gaining some relief. I did not want to even try to get into a car to get to the ER, nor did I want to call an ambulance, or spend the balance of the night in the ER on dilaudid. Had it gotten any worse, I guess there would have been no other choice. I just hate when I arrive in the ER and they question me like I am drug seeking. It does nothing but make me more frustrated. I have even shown up before with a 5” stack of records and MRI’s, and it seems to not make any difference.

The pain I have been having in my back sends my CRPS II into a downward spiral. Then EVERYTHING hurts from head to toe. I have full body CRPS II. My dystonia was acting crazy for days in my legs, and finally worked its way to my back. I have really been struggling with the CRPS for weeks now and it seemed to have bottomed out last night.

I hate taking the opioids, and have not had to have any in many months. I have them only for breakthrough pain, such as last night. Man oh man, I woke up with the worst headache ever <sigh>. I guess a sort of hangover from the meds.

Anywho, I guess that’s all for now. My back is starting to yell at me, so I guess I will quit this post and lay back down. I have a PC on a hospital bedside table next to my bed, but trying to lay down and type is tough. So sorry for such a desperate post earlier, but I was just that, desperate.
Thanks again to those who responded. It truly helped to vent and know that I was not alone. Everyone on this site rules! What a blessing you all are!

So glad to hear you are doing a little better.

LMAO... "write" ... hum, yes, I was on major drugs and obviously couldn't even type proper English.

lol, we've all committed the typo sins Vrae, and usually without your extreme situation! If only the 'major drugs' worked on the pain as effectively as they do on our brains.....

Glad you are feeling a bit better today

Bram.