Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-02-2013, 08:33 PM #1
Dubious Dubious is offline
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Dubious Dubious is offline
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Join Date: Jan 2009
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Quote:
Originally Posted by rsdno View Post
Hi Sometimes when I write which is rare plus I spare you my poetry . I was written a scathing letter about how I mention I had RSD 45 years to show I suffered more than others . It is most certainly not true .
I want people to know that you can have RSD 45 years ,it didnt kill me I'm 59 and it probably wont kill you . I come here on occasion to read and learn to write a PM or an answer if I can .
By the way what I say and feel is all of us RSDers are hurting this second so past pain really doesnt mean much in a temporal way.
I apologize I have been coming to Mark Lester's RSD Group,Fibro and now PsA RA since the end of the Millenium .
By the way does anyone else have Psoriatic Arthritis I read over %10 of Psoriasis sufferers may have this Autoimmune painful disease ,if you have please write here or sympa@inbox.com
Again I am sorry if anyone thi nks I let people know how long I have had RSD as being a negative thing ,it really makes me feel terrible
Gentle Hug
rsdno
Didn't see the original thread, but wow...45 years! I think I need to get down on my knees and thank the good Lord for people like you. You have soooo much to offer, experience-wise. Please don't stop posting!
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allentgamer (09-21-2013), birchlake (09-03-2013), rsdno (02-16-2016)
Old 09-03-2013, 03:26 AM #2
Brambledog Brambledog is offline
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Brambledog Brambledog is offline
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Don't feel bad about posting rsdno. Why should you conceal the years you have had this thing?

Maybe someone was just having a very bad day and struck out. It happens. I don't recall seeing a post from you that made me feel like you were saying you have it much worse and we should all stop complaining! It's not a competition

I for one find it amazingly helpful to know that someone out there has been dealing with CRPS for so long and can still laugh about it and live life in any way at all. It gives me hope. Some days the fear of what the future holds is overwhelming, and to know that it is manageable for all that time gives me a rock to lean against.

Keep posting and stay positive. It's like a shot in the arm Thanks.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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