Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-16-2013, 03:27 AM #1
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Alaska Mike, thanks for your reply. Medtronic recommended 2 atmospheres or 33 feet. The Doctor and technician both wanted to go to 2.5 atmospheres in order to treat the CRPS better, but Medtronic recommended against it. We are doing 40 dives, well ... that was just today increased to 50 with a possibility of 60. We are supposed to get the pump filled every 2 weeks while in HBOT treatment.

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Originally Posted by ALASKA MIKE View Post
Do you know how deep in feet or ATA (atmosphere's) you are diving to?

I know the Medtronic pumps usually limit scuba diving to 33 ft because they say as pressure increases, pump flow decreases. Have you felt like your pump delivery has changed? I have talked to a few doctors who say Medtronic is being very safe with that depth and actually think you could dive to recreational limits in scuba but I never got a clarification on that.

I have a pump in me so that is why I put HBOT on hold until I learn more. I do know from other friends with severe CRPS that you must dive much deeper than the HBOT systems you see athletes using before UFC fights or NFL games. Those systems are usually 1.3 ATA max. My friends reported that they were treated in 2-3ATA and sometimes much deeper like 6 ATA. did they start you between 1.4-1.6 ATA?

I doubt you would feel different this early on because most of my friends did not feel a difference until after 20 dives and then some of them repeated 6 months later at 40 dives because they did not feel much different from the first 20 dives. They did feel better after the second set for some reason. none of them no why but are glad they tried a 2nd time.

I hope you get some relief from this and thanks for reporting to us about how you feel each day.

Mike
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- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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ALASKA MIKE (09-16-2013), allentgamer (09-17-2013)
Old 01-01-2014, 10:29 AM #2
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Default Hbot update?

Hi there,

I'm wondering how you are doing now after the HBOT series.
Thanks!
Lori
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Old 01-01-2014, 10:41 AM #3
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I was wondering that just the other day Sirena

DJhasty - I hope things are going well for you after the HBOT and that the gains you made have stayed for you...maybe even improved? I'm hoping so.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 01-03-2014, 04:28 PM #4
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Yes, please give us an update (hopefully a really good one!)
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Old 01-07-2014, 06:20 AM #5
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Thank you Sirena, Bram, and SloRain for your inquiries. I had some really good weeks after my HBOT dives. I wish I could leave it at that except it is complicated. I went in to my Neuro for a 3 month visit. We decided to proceed with the Botox injections like I have been getting due to severe spasticity. It was about 24 injections into the tendons. Darrell and I attribute my latest flare to these injections. My pain levels run typically at about a 5-6 with intermittent spikes, which is still an overall improvement from before I went diving. The redness and burning are back with a vengeance. The cramping continues all over my body including in my neck chin throat and tongue. I plan to get some follow up dives in February or March. Then I'll stay away from the needles. Despite this latest flare, I do believe the HBOT was an affective treatment for me for CRPS Type II.
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Djhasty
- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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ALASKA MIKE (01-07-2014), Brambledog (01-07-2014), CRPStweet (01-17-2014), Nanc (01-07-2014), Sirena (01-09-2014)
Old 01-07-2014, 08:19 AM #6
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Good to hear from you and I'm glad your improvements from the dives continued....but I'm so sorry the injection have caused problems. Sounds like you have a great plan though, and I'll keep my fingers crossed that you can find more improvements with the next round of dives.

Take care and let us know how things go.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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