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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-16-2013, 03:27 AM | #1 | |||
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Alaska Mike, thanks for your reply. Medtronic recommended 2 atmospheres or 33 feet. The Doctor and technician both wanted to go to 2.5 atmospheres in order to treat the CRPS better, but Medtronic recommended against it. We are doing 40 dives, well ... that was just today increased to 50 with a possibility of 60. We are supposed to get the pump filled every 2 weeks while in HBOT treatment.
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Djhasty - CRPS Type II with migraine, Dystonia and spasticity - Diagnosis 2010 following - Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture |
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"Thanks for this!" says: | ALASKA MIKE (09-16-2013), allentgamer (09-17-2013) |
01-01-2014, 10:29 AM | #2 | ||
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Hi there,
I'm wondering how you are doing now after the HBOT series. Thanks! Lori |
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01-01-2014, 10:41 AM | #3 | ||
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I was wondering that just the other day Sirena
DJhasty - I hope things are going well for you after the HBOT and that the gains you made have stayed for you...maybe even improved? I'm hoping so. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | Nanc (01-01-2014) |
01-03-2014, 04:28 PM | #4 | |||
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Yes, please give us an update (hopefully a really good one!)
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01-07-2014, 06:20 AM | #5 | |||
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Thank you Sirena, Bram, and SloRain for your inquiries. I had some really good weeks after my HBOT dives. I wish I could leave it at that except it is complicated. I went in to my Neuro for a 3 month visit. We decided to proceed with the Botox injections like I have been getting due to severe spasticity. It was about 24 injections into the tendons. Darrell and I attribute my latest flare to these injections. My pain levels run typically at about a 5-6 with intermittent spikes, which is still an overall improvement from before I went diving. The redness and burning are back with a vengeance. The cramping continues all over my body including in my neck chin throat and tongue. I plan to get some follow up dives in February or March. Then I'll stay away from the needles. Despite this latest flare, I do believe the HBOT was an affective treatment for me for CRPS Type II.
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Djhasty - CRPS Type II with migraine, Dystonia and spasticity - Diagnosis 2010 following - Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture |
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"Thanks for this!" says: | ALASKA MIKE (01-07-2014), Brambledog (01-07-2014), CRPStweet (01-17-2014), Nanc (01-07-2014), Sirena (01-09-2014) |
01-07-2014, 08:19 AM | #6 | ||
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Good to hear from you and I'm glad your improvements from the dives continued....but I'm so sorry the injection have caused problems. Sounds like you have a great plan though, and I'll keep my fingers crossed that you can find more improvements with the next round of dives.
Take care and let us know how things go. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | Djhasty (01-07-2014) |
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