Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-11-2007, 07:46 AM #1
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Hey Sue,

I was on topomax for abit. I think it was ok but no miracle. It is worth giving it a go - if it doesn't work then you can always come off it. Unforatunly there is no magic answer to RSD.. or ways to reduce the pain. Give it a couple of weeks and if it still doesn't help then bin it... you won't be coming off the oxy to try it, will you?

Best of luck with it! Love

Froggsy xxxxxxxxxx
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Old 05-13-2007, 08:28 PM #2
sue k sue k is offline
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Hi, Frogga,

Thanks for the reply. I think they want to take me off of the oxy. I don't want to go off. I went cold turkey once when I was on methadone and oxy. I have never been so sick in my life. I've been on nuerontin, oxycontin, and so many others. The oxycodone is the only one that did not make me sick and seems to allow me to handle the pain better. It still hurts so bad, but at least I can get out of bed, walk a little better. (my foot is starting to turn in and I have had foot drop since the hip replacement) I have sciatic nerve damge in 3 places. I can somewhat handle the nerve pain, but the RSD pain from my knee down into my foot is too much. I guess I'am lucky, its just now after 8 yrs feels like my other leg is starting to hurt and burn. I think I'll ask them to keep me on the oxy also. Its just hard, my family always makes some comment about how many pills I take.

Hope all is well with you,
Sue
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