Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-14-2007, 07:54 AM #10
daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
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daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default trying it

it helps me.

I could not take neurontin the first time I had RSD in 2001, and they put me on topamax. It has helped my pain, headaches too. I didn't get much relief till I was on 200mg - 100 twice a day. Gradually worked up. The first week or two I felt really woozy and odd when taking it, but was able to go up in mg pretty fast after that. I have myofacial pain and probably fibro along with some migraines and (with the RSD) and the topamax helps all of those as well as the RSD pain.

I see people stop when they get to 100 mg if it does not help. My neuro has had me on as much as 300 to see what results were. At that rate, I had a bit of tingling in my fingers from it, but nothing else.

You will find that things will taste funny for a while, but I find that after a few months, that will go away. Soda pop will be the worst of it.

Good luck.
Jules
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