Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-11-2013, 02:29 AM #1
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Angry absolutely absurd!

Quote:
Originally Posted by AZ-Di View Post
2. How do you have a "touch" of RSD? Is that like being a little pregnant?
If it wasn't so horrific this statement would be funny. YES! It's just like being a little pregnant. OMG, I know you must just be mad as hell. I have no idea how you could ever have a touch of RSD, but I'm sure with his fancy medical degree and years of experience, he could break that down for us.

I saw this once and I think it applies here: my disease is more real than your imaginary medical expertise!

I feel for you hon and I am so sorry you're having to fight for benefits. It is absolutely absurd!
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Old 09-11-2013, 03:21 AM #2
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I can only echo what the others have said, but AzDi I think you can allow yourself to be hopping mad at such an idiot - sadly these assessors seem to come from a camp of out of work or out of touch practitioners, we have the same kind of assessments here in the uk, and people say very similar things to you. The system - as always - sucks. Just hang on to what you know is right, don't let his asinine remarks get into your head, and keep pushing for your claim. In the uk, over half of claimants rejected by the assessors have their claims upheld by the appeals process. Sometimes I think they just want to see how many folk they can put off by being so vile....

Hope you have a better day!

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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AZ-Di (09-11-2013)
Old 09-11-2013, 10:59 AM #3
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AZ-Di, some due, it seems, have a touch of RSD, what ever that can be, but through the years I've chatted with a couple of folks who had RSD but it was limited to a generally small area and never spread over a span of years. However, as bad as those you see in wheel chairs with RSD, those with RSD in their arms and hands are kind of worse off career wise than those where their lower extremities are effected. Can not do much when your hands are crippled. AZ-Di, this examiner will submit a report, has he done it yet? If not do not be surprised if you get a positive report from him.
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Old 09-11-2013, 01:25 PM #4
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Many thanks guys!! And I do apologize because I know many of you suffer with the pain more than I do. I'm sorry that many of you have it more widespread too. I should count my blessings there. Before I started having my nerve blocks I remember how unbearable the pain is. Now it's a tolerable level and the bad stuff is just intermittent.

This was just a rant on my part. I just hate being made to feel like I'm trying to play the system to get welfare. This is something I've paid into for many years!

Thanks for the support!
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