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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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I dont know if you an pull this one off. Maybe if you cant or don't want to consider it now because you don't think your pain levels will permit, you might be able to consider it at another time. I got off of the anti inflammatories. My acid reflux made it impossible for me to sleep at night and I was not able to lie down, no matter how long it had been since I ate anything or took the medications they had prescribed for me. I have to say too in after thought , that I probably could not have stopped talking them, had I not found out what my inflammation triggers were. I had acid reflux so bad that I was miserable and couldn't sleep, even sitting up. So I talked to my doctor and I quite taking them. That made a HUGE difference for me, and I have no longer had acid reflux problems or any of the difficulties, by just cutting that one thing out. If I have a hugely painful Fibro-day, where it hurts unbelievable to sit with my legs elevated, even, then I take ibuprofen, but I only take it that day and one time. I've had family members have serious medical issues caused by constant use of ibuprofen to manage aches and pains of a normal work day. I wouldn't take that with any regularity without my doctor knowing about it.
more hugs, Sylvia |
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"Thanks for this!" says: | RSD ME (09-22-2013) |
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#2 | ||
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Senior Member
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I'll check with my doctor about that. But I tried weaning off them before, and the pain was too much to bear. I haven't had to increase all the pills I'm taking in the past year, but I can't seem to decrease them either. I'll check though. Thanks for the advice.
Your caring means so much to me. |
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#3 | ||
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Member
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I keep promethazine on hand for nausea. It works well on me and I make sure my Dr keeps me supplied with it lol. When I start having a ton of pain I get really nauseous and nothing usually works, except the promethazine, also called fenergen. Even peppermint doesn't deal with my nausea, and when I start vomiting just leave me be with a big glas of water and a stool to sit on. But then again rsd is different for all of us except the pain.
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#4 | ||
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Senior Member
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Thanks Allanira. I will ask my doctor for that too. I'll take anything that will help with the pain and nausea. I haven't had any vomiting, but sometimes feel like I'm getting close to it. I'm so sorry you have all that pain and vomiting. It's bad enough having rsd pain without all that other stuff too. Peppermint doesn't really help me either, but sleepy time tea seems to calm my nerves and stomach a little for some reason! Maybe that might help sooth your stomach. My husband gets it for my at shop rite. (I can't drive so I have to bug the poor guy to do these things for me). The guilt I feel about that is another downer about this disease. Well thanks again. You have really great advice and I hope you never have anymore of those stomach episodes. I'm so sorry you have to deal with that. I'm here if you need a friend too. Take good care of yourself. Soft hugs from Renee.
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#5 | ||
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Member
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I have the sleepy time tea too lol. Its the chamomile it. I have straight chamomile tea too. I love drinking it. It tastes good and it does help a little with nausea. It settles the stomach. Native Americans have used it for pregnant women with morning sickness and other upset tummy issues for generations. Just either a little honey if I'm feeling adventurous or usually regular sugar. I have to sweeten mine a bit. Also if you like ice tea then make your cup if chamomile like usual for hot tea and pour over ice. It actually really refreshing and just as relaxing. My son can even have it because it doesnt have caffeine. I have forbidden him caffeine lol. I keep telling him it willmstunt his growth lol. He's 2 so he doesn't get it.
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"Thanks for this!" says: | RSD ME (09-22-2013) |
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#6 | ||
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Senior Member
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My son is going to be 20 years old next week. They grow so fast. Enjoy every moment. It flies by really quick. He doesn't like tea or coffee. I love both. He's strictly a fruit juice and water man! Always has been. (milk too). 2 is great age for a kid. Especially with the holidays coming. I used to love to do the reindeer hooves in the snow and milk and cookies for Santa stuff. Lots of fun. Heck I still may do it. My husband loved eating the cookies and milk every year! lol. Now I have furry kids (2 dogs and a cat) all rescues. They are cool. I have learned so much from you. You are a very smart person. Thanks for all of the helpful advice. The chamomile info is very interesting. I never knew that. Thanks again for being so nice. I'm sorry I've talked so much. I do feel better though. I really appreciate your kindness. Hope you have a good night. Bye for now.
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#7 | ||
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Member
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We're here to help each other. I have learned so much from the people here. There are some I wish I could hug they have helped me so much. Be it with information on this stupid diesease or helping to get me grounded again after having a melt down. I have decided after I can start treatment again I'm going to also go see a psychiatrist. Its hard for me to say that, but with as much pain and all the fighting I have done just to find out why I think I need to talk to someone. The good thing is being a military spouse I don't have to pay for all the treatmentsand drs. Except I'm not sure how things are going to work after this switch in insurance. It took 3 months to get a new referral to go back to aquatic pt. By then I was pregnant and couldn't go because the temp of the pool. I will get back into it after this goober boy is born though. I will also be in another area that has more amenities than this poh dunk place I'm in now. Keep in good cheer and enjoy life as much as you can.
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"Thanks for this!" says: | RSD ME (09-23-2013) |
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#8 | ||
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Senior Member
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Thanks again. Here I am feeling sorry for myself and you are pregnant with RSD. I'm so sorry you have this at such a young age and while pregnant. I'm 48 old and am an old hag! I give you so much credit for dealing with RSD. You have alot of strength. Our children gives us strength we never knew we had to deal with anything too, so that we can protect and be there for them. My son has been my anchor as I know your children are too. Congratulations on your oncoming arrival! How exciting! As for the psychiatrist, I have been seeing one since I got this disease. He has helped me immensely. I take antidepressents and antianxiety meds along with the meds my pm and neurologist drs for my have given me for the RSD and Fibromyalgia. I didn't want to go, but I was so overwhelmed and scared by this disease, I knew I needed extra help. It's nothing to be ashamed of. We are all dealing with alot. RSD is very scary especially because of it unknowns. Just be careful not to take anything until you are sure it's okay with your drs while you're pregnant and also if you plan to nurse afterwards. Because some meds can possibly hurt the baby while inutero and while nursing, let the dr know all this prior to taking anything. I'm sure you already know this. My dr has helpted alot, but I still need to talk to people going through what I am. The combination helps alot. And don't worry, the pills don't change you. They just make it easier to cope. If you don't want to take pills, a psycologist can help without giving meds. And God Bless you and your husband for protecting our country! I seem to be having a better day today with my stomach, but am still seeing my dr tomorrow to make sure it's nothing serious. Thanks for helping me through my meltdown this weekend. I'm not always that upset, but it was just a really bad pain weekend for me You're a good friend. Get some rest and take good care of yourself and your little ones. And keep the faith. You are going to be just fine.
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"Thanks for this!" says: | Allanira (09-23-2013) |
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