Hi Allanira,

Try not to beat yourself up for the lack of care you got in the beginning many people even being treated early on don't always go into remission. I am thankful and lucky to have a brilliant team of doctors, however that doesn't mean I will ever go into remission in fact.. with type II it is very unlikely, unless the damaged nerves can be fixed and with CRPS already in play this is a huge gamble. My doctors have been very realistic with me they don't promise relief nor do they tell me it will get better, we just keep trying to find things that help some.. and when it begins to lose its effectiveness we try something different for a while, then later we might go back to it again. They also push me hard to reach deep down to find my inner strength and determination not to let this beat me - I've learned to appreciate this "push" very much. The grim reality is that most of us will never get better but, we can learn to cope and fight back the mental barrier to give up!

Keep fighting,
Tessa

...life comes with no guarantees. I choose an adventure with hardship/pain over no adventure at all – every time!