Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-25-2013, 07:20 AM #1
Allanira Allanira is offline
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Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
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Hello, sorry you got here by having the beast. I got rsd but didnt know when I was stationed in Iraq serving in the Air Force. I have had 2 arthroscopic surgeries on my knee and a patello femoral resurfacing. I think the last one really did me in. This was all before I found out that I had rsd. They gave me one of those machines also after the second arthro. It hurt like the dickens. Don't let it get you down though. I figured it out on my own that ice hurt and heat felt good. I wasnt diagnosed until this year. At all my many many pt sessions they did ice until I said no. I told them if they wanted to put something on put heat it feels better than the cold. Heck I love eating ice but it hurts. Don't ever forget that when we get down and start feeling blue our pain intensifies. Its a vicious cycle. We hurt then we start feeling blue and we hurt more. It sucks, but itsna fact of our lives. I have tried elavil and gabapentin so far. The elavil caused bad mouth sores and the gabapentin make me a very happy camper when I saw my husband lol. They both helped a tiny bit with the pain. I also take norco when I absolutely have to. I have had 1 lsb and it worked awesome for about 3 days then I was back at the grind stone. But I am keeping positive that we will find the right treatment for me. My treatment will be different than your or Brams. We all feel this beast differently. What works on 1 doesnt work on another. Push yourself to find your limits then push a little harder. I said a little so you don't start hurting to the point your in a ton of pain. I am one of those I push well beyond theat threshold and am in the middle of the room before I realize it and stop lol. But you arent me. The level of pain you feel and the way you feel it is different. After almost 10 yrs I have a high threshold for pain. Shoot I could give birth and it would feel like I got a splinter I think lol. Keep smiling and don't let them push you into anything you don't want to do.
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