NeuroTalk Support Groups - What a "great" night.

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - What a "great" night. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/194737-night.html)

I don't know if this might help, others have said it did, you've got nothing to lose and no risks by trying it.
http://www.openfocustraining.co.uk/exercise.html

This is totally unrelated to rsd, but this poem popped into my head after seeing this bird today, and I wanted to share it with all of you. I know it stinks and please don't think I'm crazy for it's probably just the drugs speaking. lol. thanks.

Ode to a Blue Jay

I saw a blue jay today
It took my breath away
It was pretty and blue
and a nice sized one too
And then it burst into song

A song that inspired me
The hurt and the tired me
A song full of love and of joy

A song of the good things that happen in life
A song that we all could enjoy

Quote:

Originally Posted by RSD RENEE (Post 1018253)

I get like this sometimes too Renee lol, you're not alone....:winky:

Very nice little poem, never be ashamed of anything from the heart. It's fab.

Bram.

Thanks Bram. You're so nice and you make me laugh. I loved the elk picture yesterday. And I also loved your idea of having an emergency rsd flare up kit. I'm going to definitely do that. That is an excellent idea! Thanks again and I hope you have a good night tonight that is painfree. Take care.

Quote:

Originally Posted by RSD RENEE (Post 1018081)

I'm sorry the doctors are doing that to you. I don't trust them either. I've never sued either in my life except for this rsd because a doctor told me he thuoght my dr who did surgery on my wrist might be the reason I'm like this. so I looked into itwith lawyers but they said he met the correct std of care for me. My wrist is freakin crooked and I got the rsd right after, but I had let it go. The statute was up (2years) and the stress from it only 4 months in was making my rsd flare up and I thought I would have a breakdwon from the stress of interogartories and an oncoming depostion. I don't like confrontation. I think they should raise the std of care, but no one will listen to me. They just keep doign what they want and I am permantly suffering for it. And they don't give me opinions anymore either for fear of being sued. Its ridiculous. This was my first and last lawsuit. the drs and lawyers both stunk to me. I feel that sometimes their all out for money. The dr you saw for your mental health was so out of line inmy opinion.
She had no right to tell you its in your head. It is real. I know it as well as everyone else here who suffers from it. They are ignorant anddon't know or want to take the time to understand what you have to help you. That makes me so mad. I had drs who thought my spread was in my head until I started showing more physical symptoms. Then they got really quiet and didn't say anything. If I were you I would check online for other mental health professionals. and check their healthgrades for any malpractice lawsuits. The one who did my wrist had a suit that he lost before me. I found out too late though. And the one who did my hysterectomyhad two suits that he lost before me.I knew that too late too. (but so far have had no problems with what he did for me). Also , check rsdhope.org. They mayhave a list of drs who can help. My husbands insurnace covers most of my shrinks bill, but I have to pay some. And in the meantime, ,try to get some rest andnot stress. I know its hard. I"ve been stressed and depressed all day, but I cried it out and am feeling a little better now. Even my stomach finally feels a little better after 8 days of pain. Not taking advil is helping it. I hope you have a better night tonight with your babies and don't give up hope. There still are good drs out there who really care. You just have to keep searching till youfind them. I"m sorry you're going through this and pregnant no less, but I am always here if you need a freind.

PS - Just wanted to be clear. I thought the drs and lawyers on the other side of my suit stunk and were trying not to get sued so they wouldn't lose money. My drs and lawyers were great and I appreciated everything they did to try to help. I believed they worked based on principal not for money. And I thank them for that. I'm saying this so you know that you know that there are good drs and lawyers that care and that you can trust. You just have to keep searching until you find them. Don't give up hope. And forgive me, I meant to say psychaitrist, not shrink. He's a good doctor too. Take care.

Quote:

Originally Posted by RSD RENEE (Post 1018253)

Bluejays are cheeky little buggers, aren't they?! and so pretty!

No dr wants a malpractice suit pending on them. Lawyers are payed well to be skunks. No offense to anyone in law here. I've never had to contact one but was kind of thinking about it after the last ortho surgeon put the trough from my resurfacing in cruked.:eek: Didn't do it though. He retired and shut down before I knew it was cruked. Well I hope everyone keeps smiling and thinking positive. Im thinking its only 13 1/2 weeks till I meet my new goober boy even though I hurt.

You are immensely brave

Hi Allenira, I can not even imagine being pregnant and having RSD. I struggle so much with getting through most days that all of you who have children amaze me. I can't imagine being able to be there for a child with the amount of pain we are all in. Seriously, it's amazing to me. I had only gotten married 4 years prior to RSD and we tried unsuccessfully to pull it off in the last quarter (I was 38 when we married) so I didn't give myself much time to even attempt children, though a mother is the one thing I always wanted to be. We had already decided it wasn't safe for me to continue, at my age after two losses. I Still can't imagine social services or any agency allowing us to adopt with my RSD, so family was not working out for us. The sacrifice you are making to have a healthy child is very impressive. Forgoing the drugs that are dangerous, that would give you pain relief. You are a brave one.
Keeping you in my thoughts, Sylvia

Finally got moremthan a couple hrs sleep. I am still in a flare but its starting to calm down. The bad thing is I need to do some shopping and get boxes to start packing lol. So of course Im gonna hurt lol. Anyone want to go shopping and do my packing for me lol?:D

Quote:

Originally Posted by Allanira (Post 1018959)

I sure would if I were there.